Hi Beaumont44, 

I just wanted to say we are thinking of you during this stressful time. I guess the MDT meeting was today and I hope that you get an appointment soon to find out exactly what is going on. It's completely normal to be scared when dealing with all this uncertainty at the moment and after having been through all these tests. 

Let us know what you find out - you are not alone though and many members of our community have been through this before and will hopefully come and say hello soon and share their stories with you. While you are waiting, as there is nothing harder than waiting for a diagnosis, I thought I would share with you our helpful tips to help you cope while waiting for news. 

Best wishes, 

Lucie, Cancer Chat Moderator

Thankyou for your response , nothing today but hoping a phonecall in the morning x

Thank you Beverley39,

I will have to have two different surgeries after the chemotherapy. They will hopefully be able to remove the tumour in the bowel if it has reduced in size enough. The oncologist said that if not they would give me five 10 min doses of radiotherapy and then surgery. My surgeon has told me it will be keyhole surgery but not how long it will take or what happens afterwards. I will then have to recover from the surgery and then go to a hospital in Edinburgh to the liver specialists were they will respect the liver with more keyhole surgery. I’ve been told of two other side effects of the chemotherapy that I need to be careful with. I have to wrap up really well covering my nose and mouth when going out walking. I also have to stay away from the fridge and freezer for the duration of chemotherapy. He said it can cause peripheral neuropathy which can stay with you even after chemotherapy. Also to stay warm in the house and not to drink cold drinks from the fridge. Everything has to be at room temperature as it can cause a choking sensation in your throat that is quite scary. So with all this information and being a high risk of blood clots I think it’s going to be a rough three months. I have four brain aneurysms which one of them has been coiled. They are all stable and I do not need to have my next brain mri until 2026. I also have had atrial fibrillation since 2012 which is treated with the lowest dose of bisoprolol. I think if I keep taking care of my body physically and keep doing my meditation and positive affirmations for my mental health then this will get me through my treatments and see off this evil presence that decided to enter my body. I hope you are doing ok and are feeling better since your chemotherapy and surgery.

Take care xx

Hi Willow

I feel for you.

I have not had my colonoscopy yet and I think no cancer will show, so I am just with Jesus, as usual. 

We lit the first Advent candle today, which is so comforting after Friday.

Love and God bless

Anne

You can still talk to me (and the others) of course. 

I hope this place is of help to you. 

Eternal Love

Anne

Bless you, Beverley. 

It certainly is overwhelming. My nephew nearly died as a baby and had to have a bag for a while, as a tiny baby. I cannot tell you what his mum and dad (my Brother) went through. He was rushed down to London in the end, nearly dead, though it was not cancer. 

It is reversed. Wishing you well. Holy Church is constantly praying for the sick.., especially since Friday (heartbreaking).

God bless you sweetheart. 

Hi have you had your appointment yet? How are you feeling? Xx

Hi iv got mri scan and ct scan on Thursday, I have been a bit fed up even though my last tablets are end of the week I'm really struggling to get them down , how's your daughter getting on ? Hope you had a nice rest away xx

Sorry to hear you’re not feeling great.  I can’t imagine what you must be going through even though it’s happening with my daughter she has coped do much better this time.  Was the right thing to do lower the dose.  I thought your scans were today.  Had an amazing time a laugh with the girls.  Just what I needed.  I will check in with you on Thursday.  Take care lots of love xx

Oh that's really good news , anything that's helps is good , yeah Thursday at 5 pm and 5.25 , imagine will be 2 wks for results ..im so glad you had a good time just what you needed, thankyou lots of love to you too xx

Morning how are you today? How did the scans go? Xx

Hi I'm buzzing this morn to have finished tablets so that's chemo done ..hopefully that's it , scans went ok ct and mri , I assume I get letter to sew consultant with results and next step, how are you and your daughter? Xx

Hi I'm buzzing this morn to have finished tablets so that's chemo done ..hopefully that's it , scans went ok ct and mri , I assume I get letter to sew consultant with results and next step, how are you and your daughter? Xx

So pleased for you must be such a relief to know part one is done.  My daughter is ok next round of chemo next Wednesday so number 4 will be done, just 2 then to go.  Her hair is thinning, did you experience that? Xx

My hair is a weird one I don't know what's going off with it ! But that was before the cancer! It was growing at one side everyone is baffled with it , I've been for it cut today had quite a bit cut off and it's def alot thiner than it was , but I can't put it down to the treatment xx

Ok my daughter has gone to a shorter Bob style, she has my genes thick hair.  Her hair has definitely thinned out.  You can now relax and think about Christmas with your family xx

Yeah I've always had long thicker hair , I asked the doctor when I got first diagnosed if my hair thinning could be the onset of cancer like a trauma type thing but they said no ..so I really don't know, but the chemo I had I wasn't supposed to lose hair but it does say can cause thinning , yeah I'm going to try chill now , i will let you know when I get appt for results , let me know how your daughter gets on with the next chemo ..lots of love xx

Yes chill, I will let you know how she gets on next week.  Lots of love, enjoy your weekend xx

Good morning, just a quick one to say hope all goes well with the next chemo today..lots of love xx

Thank you, my daughter has her date for scans thd 20th January, feel anxious about that, as I am sure you were also? Xx

Morning yeah it's the waiting again for results and next step ...consultant is ringing me at 11 but its just the usual phone call to see how I'm doing , il ask if any date yet for results xx

Consultant rang me me with my results its all positive the chemo worked well and it's shrunk well ..so il get a letter now with date for surgery xx

Oh wow that is amazing I am so happy for you I am actually crying for you.  That’s such good news.  Lots of love xxx