After my colonoscopy the doctors words were a blur but indicates serious and cancer , had ct scan mri and cpex in morning, weds is mdt meeting then I assume I'll get an appt to see what's happening , I have never been as scared in my life .
After my colonoscopy the doctors words were a blur but indicates serious and cancer , had ct scan mri and cpex in morning, weds is mdt meeting then I assume I'll get an appt to see what's happening , I have never been as scared in my life .
Hi Beaumont44,
I just wanted to say we are thinking of you during this stressful time. I guess the MDT meeting was today and I hope that you get an appointment soon to find out exactly what is going on. It's completely normal to be scared when dealing with all this uncertainty at the moment and after having been through all these tests.
Let us know what you find out - you are not alone though and many members of our community have been through this before and will hopefully come and say hello soon and share their stories with you. While you are waiting, as there is nothing harder than waiting for a diagnosis, I thought I would share with you our helpful tips to help you cope while waiting for news.
Best wishes,
Lucie, Cancer Chat Moderator
Hi I got diagnosed with rectal cancer on 14th of August, I have oncologist meeting on weds this week to find out the treatment plan of chemo then surgery as I understand so far , im scared but positive , the doctor sounded positive its not spread anywhere , I keep reading of people with stoma and its something I know nothing about and scares me , thanks for listening.
The doctor said 2 wks so I assume il get a letter, I go back to see him on the weds and start it on the Friday, so looking like 20th Sept x
Hi how are you and your daughter ? I got letter and its as expected starts on the 20th im quite scared now , just hope it's not too hard on me x
Hi my daughter went back in Wednesday so they have done the biopsy again, just waiting now she has appt on the 17th September with her consultant to discuss her treatment snd find out if it is cancer. I am extremely anxious my daughter now just wa ts to know if it’s cancer. You must be scared I would be but hopefully it all goes well for you, my daughter is only 26 I hate it that she is going through this. I will be thinking of you, please stay in touch to let me k ke how you are doing, I will let you know once we have some news xx
Hi how are you? My daughter got the call today we were dreading, she has stage2 colorectal cancer, appt with the oncologist on Saturday to discuss the next steps xx
Hi oh no I'm so sorry to hear that , how has she taken the news ? And yourself? I'm literally just sat reading the chemo plan again , hopefully it's localised for your daughter like mine , not spread anywhere . At least not a long wait to discuss it and get a plan in place , same again it's so weird for me saying to myself I've got cancer when there's nothing wrong with me ! Sending lots of love xx
Hi to everyone here. Been helpful to read your experiences and I wish you all strength and healing. I believe I have symptoms of colon cancer, GP has done bloods, calprotectin and h pylori tests (all negative) and hopefully getting fit test result on Monday at GP appointment. I haven't been referred yet but think I should have been with 4 weeks of abdominal pain, constipation, sciatica backache and months of fatigue.
The waiting is awful.
Keep pushing your GP for a referral, my daughter has had symptoms for a very long time, her GP surgery did nothing. Things could have been very different for her. Hope things go ok for you.
Thank you. Love to you and your daughter x
Hi you were in my thoughts yesterday , hope all went ok and you now have a plan as to what happens nxt xx
Hello yesterday was just another MRI, I got it wrong so will be next week she gets the treatment plan. My daughter has been to A&E this weekend as she has been losing quite a bit of blood. She is going to call her consultant in the morning ask to see him, she is suffering so much. How are you? Xx
Hello yesterday was just another MRI, I got it wrong so will be next week she gets the treatment plan. My daughter has been to A&E this weekend as she has been losing quite a bit of blood. She is going to call her consultant in the morning ask to see him, she is suffering so much. How are you? Xx
Oh right bless her it's so worrying , I'm fine had a nice wkend away , as the week goes on il be getting anxious I go weds for bloods then Fri for first chemo ! Still dosent seen real , hope your daughter gets her plan soon xx
Yes me to, I hope thd chemo is ok for yiu. I think it’s likely she will need chemo x
Hi how are you? How are you feeling about tomorrow? My daughter has her appointment next Tuesday with her consultant to discuss her treatment plan. Hope it goes ok for you, will be thinking of you xx
Hi I had appt in Sheffield yesterday just about tomorrow and a blood test , to be honest it all sounded positive but I'm still scared about the chemo, but they give you stuff to counter act the side effects , my appt is 10.15 in morn and they said il be done by early aft , how is your daughter ? And yourself? Xx
Thinking of you Beau and Nanny and your daughter. Do you have plans to listen to something during chemo to help you find some calm? Eg meditations, affirmations, music? I'm finding this sort of
Hi there I'd not really thought about it to be honest , I'm hoping to chat to others there , I can chat haha or il just be on my phone , how are you getting on? Xx
Hee! Well if you ever fancy that sort of thing I really recommend Insight timer. Got a friend who is having treatment who swears by it x
Still getting pain and still worried as have been ridiculously constipated, (had no idea as it was a partial blockage) for a long time and can't understand why unless something sinister. Combined with fatigue I'm v concerned. On all the laxatives and enemas now but seems like I'm making v slow progress.
FIT test was negative along with others which is great. However I'm worried that ongoing blockage is "hiding" damage if that makes sense. Running around 4 young kids in between toilet runs is not fun but I'm getting used to managing it.
So I've been referred to 2ww for colonoscopy but as lower priority due to negative FIT. Not sure what that means really. Appreciate the encouragement to push for referral, might not have done otherwise.
Good idea to chat though, it will help you and the others. I tend to isolate and withdraw when I get stressed which is NOT healthy. Have to remind myself that human connection is helpful when going through this stuff and I'm not alone.
Good luck tomorrow and keep us posted x
We found out yesterday that my daughter’s cancer is stage 3 has moved to nearby lymph nodes, waiting for an appointment with the oncologist to discuss chemotherapy she and I are gutted. It’s so unfair she is going through this. Xx
Hi , I'm sorry to hear that , really hope you can both feel a bit better when you get more info and a plan so hard , I've had first chemo through canula was at hospital about 3 hrs , the drip took 2 hrs , feel fine apart from tingly hands and hand a bit sore , I came home with a big bag of tabs , mouthwash and cream if I get dry skin, I take 4 tablets tonight, then 2 lots of 4 for nxt 2 wks , also got steroids for nxt 3 days , and anti sick tabs incase ! I feel I'm laid here waiting for a side effect , very weird feeling but it's the first day to getting better , im thinking about you both and I look forward to hearing when you start treatment as it does feel like I'm getting somewhere now ..take care xx