Hey everyone, 

Hope your all okay. 

Struggling to sleep right now. 
Had my meeting with Oncology today, lovely person and talked me through everything. I just feel like it was such a different conversation compared to my post ops. 
Post ops was so positive and it all felt very “you can go for chemo if you want” radiotherapy wasn't even discussed. I was told to check over Predict with the sentiments that my cancer was removed with surgery and due to its stage/grade and as a luminal A its less aggressive/likely to return and if I wanted I could just take my tamoxifen and go but I opted to go for chemo to mop up any strays and for my own piece of mind.

Cut to today’s appointment and its now being referred to by the Onco as “more aggressive” and although in terms of treatment Im HER - it did have HER cells but its still negative and it wont change treatment at all. Il be doing 4 sessions of EC and 4 of Paclitaxel over 4 months. Il also be having some sort of injection for my bones once every 6months for 3 years and being put forward for ovarian suppression now. 
The Oncologist felt Oncotype would just be wasting time as due to my age and it having been multifocal it would likely have scored in the intermediate to high risk bracket and have just merely delayed chemo. He then throws in radiotherapy due to my age even though I had a Mx I should discuss RT. I had to ask if what I was told about it all after surgery was still the case as it just felt like such a different conversation. 
I feel like what positive sentiments I took from my post ops have been shaken a bit. I know its silly to but a part of me clung on to the fact my predict score was good (98% for 5years and 90% for 15 years) for comfort but I was told by my onco to “take Predict with a pinch of salt” although he did go through it with me and got the same result as me but said where as on predict it gave me a between 1.5 - 3% benefit to chemo he felt it would be closer to 10% benefit in reality. A pretty huge difference in my eyes!

I suppose I just feel a bit more scared again which is weird as apart from the bit about HER2 I knew the rest, just felt a bit like today had a more threatening tone to it all. Has anyone else had this kind of difference between their surgeon to their oncologist? Id rather go belts and braces with it but post ops just felt so much more hopeful, reassuring and less threatening than today. 

Sorry for the long vent its just all playing on my mind. 

xxx

Hi Rambleon. Yes I had the same experience between my surgeons and my oncologist. I haven't been given my Predict scores but did do it myself. I am now very sceptical about my surgery and I'm now even wondering if I was given the right advice about that too.  It doesn't help our piece of mind at all. I go back to the oncologist tomorrow for the first cycle review. Xx

Hi BFI,

I'm glad to hear that you now have a date for surgery. I had a double mastectomy 14 years ago and stayed flat. If you want any information about that, feel free to ask.

Kind regards,

Jolamine xx

Oh hon!! Im so glad you have some time off for RT (obviously wish you were off for nicer things but still) your work havent been very supportive at all during all of this and god bless you, you really have tried your best with them!! The two finger salute lol!! 
Yup I have to have a echocardiogram before starting chemo, apparently its standard so Im waiting on that now but that will be done on the 6th so hoping things arent delayed too long. 
oh bless you with the tattoos, had you had any tattoos before? 
Have they said which tablets they are considering? 
Ive been told Il be on tamoxifen for 10 years which Im a little bit scared of as my mood can be so effected by hormones! Hope you have a fabulous weekend at the concert hon xxxx

Hi hun, only just seen your reply, well I got the call today off my absolute lovely breast cancer nurse, appears I'm post menopausal so I'll be on letrozole, be about two weeks when it's ready for me...and I've got to have a bone density scan....ffs scan for this, scan for that lol. Well if my mood gets any worse working here, God help em !!!! Lol. Never had tattoo before although my son, jesus he's got too many for my liking and my daughter had them to, although hers are quite subtle and not on show...found myself looking at breast cancer tattoos the other day.. omg lol, dare I....

Yeah took time off as I explained for radiotherapy but wish I didn't have to but hey piece of mind and not rushing back and forth....

Have a lovely weekend to hun. Xxxx

Thank you so much for the Primark tip - I had a very successful trip there after work today. Felt a bit low/scared by ‘bad boob’ looking weird when I saw it in the changing room mirror but cheered up a huge amount by the post surgery bras looking and feeling good on. 

 RedRuth84 hi Ladies, how are you both? Truly hope you are both OK as can be...xxx

Hi  TM1  thank you for checking in. How are you getting on? How are you finding your treatment? 

I had my third of six cycles last Wednesday so I'm half way through chemo after I get past these next few weeks. So that seems like such a milestone! But my 5 year old spiked a temperature over the weekend and I'm hoping that I don't get whatever it is she has got :(  

How are you getting on Rambleon88 ? 

Hello ladies!!

Im 5 days out of my first chemo session of EC. Looks like my PICC line has given me a clot which is rubbish. Otherwise Im hanging on in there just feeling a bit rough and sleeping loads. Sending lots of love and positive vibes to you both xx

Hi Rambleon,

I am glad to hear that you've had your first chemo, but sorry to hear that you've developed a clot with your PICC line. I hope that this has now been sorted for you. Be kind to yourself and give in to sleep if you need to.

Kind regards,

Jolamine xx

Thank you Jolamine!  

Ive slept like a bear recently, Im finding chemo tiredness quite a unique experience. 
At the moment the clot is now being treated with blood thinners I have to inject daily. Must admit mentally I really could have done without that added extra but oh well. 

Hope everyone is doing well xxx

Hi hun, aww you're doing great, remember that...I'm rooting for you...oh no, hope your little one gets well soon and pray you don't get it, so much going round. I'm OK, radiotherapy finished which was ok really, just the travelling every day.. already feel like Bagpuss lol, yawning my head off. That's side effects of radiotherapy and the letrozole tablets I'm on....so finding work a bit too much at the moment....got my bone scan on 13 December so hoping that's OK to....I really hope and pray everything works out for us all....stay strong xxx

Hi hun, aww you're doing great, remember that...I'm rooting for you...oh no, hope your little one gets well soon and pray you don't get it, so much going round. I'm OK, radiotherapy finished which was ok really, just the travelling every day.. already feel like Bagpuss lol, yawning my head off. That's side effects of radiotherapy and the letrozole tablets I'm on....so finding work a bit too much at the moment....got my bone scan on 13 December so hoping that's OK to....I really hope and pray everything works out for us all....stay strong xxx