Waiting on breast biopsy results - heads a mess

Hello everyone.

Ive never really posted on anything like this before but I just feel so lost and scared right now I thought Id see if there is anyone else out there feeling the same. 
Im 36, beautiful son and hubby. Couple of weeks ago was doing my fake tan, noticed just the slightest of dips in my left breast (bottom outer corner). I was due on my cycle so left it a few days encase it was something related and when it didnt go I made an appointment with my GP. They couldn't feel anything but made a referral to the breast clinic based on asymmetrical breasts. 
So I head to the clinic, consultant has a feel and agrees on the dip and can feel a lump underneath it. This then leads them to book me in as urgent for the following day but for a biopsy, mammograms and so on. So I have the mammograms done, they take multiple images. Wait again to head into the consultation room with 2 student nurses, the consultant, a Ultrasound tech and a nurse. They start talking about the lump and identify another one but at this point Im a bit numb and not really taking it all in. I have the biopsies done and then the consultant speaks to me, here is where Im upset at myself as I cant remember the exact wording (my head was and is a mess) but something along the lines of “Concerned” or “Suspecting” malignancy. It was all so fast though. I had titanium chips popped in over the two lumps tested then sent back out for another mammogram to confirm their placement and booking me in for an MRI. During the last mammogram I felt so stupid, I was almost literally frozen as every muscle was so tense and I just couldn't stop trembling. The poor technician was trying to get me to relax but I just couldn’t 
I feel so lost, so scared and to be honest completely blindsided and I don't know if Im just being a big baby or if this is a normal reaction to it all. Has anyone experienced something similar and its come back as benign? Im praying it comes back benign but their reaction and way they are speaking has made me feel like they already know it’s cancer. Then I spiral thinking oh god what if its spread already? And the littlest pain anywhere is making me so paranoid.
Im so grateful to my GP and hospital for moving so quickly, the other half just feels terrified. 
Sorry for the long rambly post and thank you for reading, I just feel like Im free falling right now x

Parents
  • Remember you can deal with what you know. Sending strength x

  • Yes a lumpectomy and radiotherapy do go hand in hand. That was my plan too. Hopefully that's all you'll need. Mine is apparently more aggressive than they thought so hence the chemo. It's not too long until 4th October now. Let us know how you get on. 

    You'll have to have a frank conversation with your boss. Radiotherapy itself is exhausting and causes fatigue. It's daily for 3 or more weeks. My sister in law is a GP and suggests being off until after radiotherapy and a bit more time to recover. 

    This recovery isn't linear and there are good days and bad. Xx

  • Hi Jenny, you are so right! Everyone is different, no one knows until they are in this situation. I certainly don't want to be rushed x

  • That's right it isn't linear and I'm certainly not taking the *** being off, just getting a good night's sleep is all I want at the moment. Frank conversation with the boss, dreading that, she'll talk over me as always and I won't be able to get a word in....I'll keep you posted, thanks ladies for your support xxx

  • Hi, how are you doing? I've been off all week and planned to go back to work from Monday...still getting nerve pain which has been horrible at times..  got appointment at my doctors in a bit, see what he says...xx

  • Hello lovely!! Awe hon have they given you anything for the nerve pain? Hope your feeling better soon, what yourself and all of us have gone through is a big deal physically and emotionally, I know you have mentioned your employer arent the most empathetic bunch to say the least, if you can in any way avoid it please dont feel pressured to go back until your ready! 

    Im doing okay and healing well, had my post surgical meeting today and my bandages off. Big long scar but its neat and tidy and healed up well. I had my pathology in, the 5 sentinel LN my surgeon took during surgery all came back negative!! It came back as stage 2a, grade 2. The Oncologist on my MDT feels I should have chemotherapy due to my age so waiting to have a meeting with them to discuss it further and see what they think, because Im medically in a grey area in terms of true benefit of chemo they have put the ball in my court but I think Im leaning towards it. After chemo its tamoxifen for 10 years then. Xxx

  • Hi hun, been Doctors and definitely have nerve pain so I've got amitriptolene to take each night and see how I get on, very understanding doctor to. I k ow what you mean about work but last week I was asked for sick noes so I know I'm only getting SSP and well...that won't pay the bills!! Doctor said if I can't manage then she's happy to give me another sick note...I can only try...this shooting pain in my arm pit, omg and when my arm is by my side it feels like it's sticking to me...its hard to describe. I'm pleased you are healing well hun, my scar area is so numb to touch still. If you think chemo will help then it's your decision, I've still got to wait for final results and will no doubt be on my next appointment and any tablets which no doubt will be same for me..  I've had to say a few times to people that even though they've removed the tumour doesn't mean I'm OK! Think some need reminding of that, in my head I'm definitely not but I know I've got to deal with it best I can, my mind my body etc. Just like yourself. Getting the dressing off was a big thing for me and coming to terms with the scar, but then I think of you hun, much more than a scar taken away and then guilt gets hold of me...that's not anything bad towards you at all, I'm grateful mine was where it was at when it was found thank God but we all in this together and that means so much to me. You have come a long way since you first posted, like I have.  Only we know what it's like.. I'm happy you are hun...hope you have a lovely weekend luv T xxx

  • Hi Rambleon I'm glad you've had good news from the surgery. That's really good.

    Have a good chat with the oncologist. Chemo is scary. I had my meeting with the oncologist but my benefit with chemo is 15% so definitely worth it after the 59/100 on the oncotyping result and definitely recommend for me. Plus tamoxifen, aromatase inhibitors and likely bisphosphonates. I just wish they'd sent me straight for chemo rather than do oncotyping. The oncologist was suprised the other hospital did that test given my tumour was Grade 3. It's just delayed everything a month or so.  

    However the list of health impacts is really scary.  I just view it as a necessary evil. Xx

  • I'm wondering if I have this now too as since the holiday I've been getting pains on and off. 

    Coming to terms with the scar is a big step forward. Every step forward is important here I feel. 

    I start chemo on 1 October, the day after my 40th birthday.  I just want to get on with treatment now. Xx

  • Thank you lovely. 
    Its weird right now as its almost like I wont let myself believe the good news at the moment. 
    my surgeon has been fantastic but said he was taken aback by the suggestion of chemo by the oncologist. I feel like now preventative chemo has been put on the table though Il always wonder what if if I don't do it. Scary though. I hope you get on alright with it lovely. Im here if you ever need a vent xxxx

  • Oh lovely please dont ever feel guilty!! Our journeys may take different detours but we have all been through the ringer and have shared experiences we can all be there for each other with. No matter what our treatments look like, everyones unique and responses are so so valid. Im sorry to hear your struggling with nerve pain, it can be absolutely horrible, it may be worth looking into hydrotherapy! Its really gentle and great for nerves.

    On the boob topic I wasnt sure how Id feel about it but Ive embraced my flat side and it doesnt bother me, being totally candid I never really noticed how small my bust was until having my mastectomy, even the size 1 softie is bigger than remaining righty real boob!! Xxx

Reply
  • Oh lovely please dont ever feel guilty!! Our journeys may take different detours but we have all been through the ringer and have shared experiences we can all be there for each other with. No matter what our treatments look like, everyones unique and responses are so so valid. Im sorry to hear your struggling with nerve pain, it can be absolutely horrible, it may be worth looking into hydrotherapy! Its really gentle and great for nerves.

    On the boob topic I wasnt sure how Id feel about it but Ive embraced my flat side and it doesnt bother me, being totally candid I never really noticed how small my bust was until having my mastectomy, even the size 1 softie is bigger than remaining righty real boob!! Xxx

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