Remember you can deal with what you know. Sending strength x

Thank you xxxx

Oh gosh, just took a call from the consultants secretary now. They still want to see me today but wanted to let me know ahead of the meeting that I may not get all of the answers today but will talk me through my options. What does that even mean??? Has anyone else had this? I feel so sick that this means they have found something else on the CT or MRI. I have a feeling the MDT meeting just took place before them calling me but I have absolutely no idea what this could mean at all. Xx

Try not to panic. Keep calm and level headed so you can take it all in and ask the right questions if needed.  It might mean that not all results are in but they don't want to delay the meeting. Let us all know how you get on. 

I'm still waiting for my oncotype dx results, but my appointment letter confirms that the cancer was Grade 3 and not grade 1 as I was told at the biopsy results. So they don't get all answers from these initial tests anyway. It's still all investigative.  Xx

Thank you, god I hope so. Its just such a *** time isnt it. I was really hoping on some answers today and just some sort of reassurance no matter how small. Oh lovely have they given you any idea when your results will be in? Xx

Ever since 5th August they've been telling me the results will be anyday now (they are sent to 1 lab in the USA). I asked if there was a chance it was lost (as I was told on 5th that one sent the same day as mine was back) and they said they'd only chase it on Monday and the results can take 3 weeks. They sent it after the MDT on 25th July

Oh lovely thats rubbish your having to wait. 25th brings it to pretty much 4 weeks now! Praying it comes back soon for you and with a nice low score so you wont need chemo. Its a emotional minefield, if your anything like me you have been mentally trying to prep for these results from the second the timer started and any delays just feels almost cruel although cant be helped. Me and my husband said to eachother yesterday “well atleast tomorrow we should get some answers” then took that call this morning but with no context to what information they can or cant say yet, you cant help but immediately go to the worst :-( x

Hi all, I'm home now, all done until 30th, bit of stinging at first for the magseed, then mammogram to check it was OK. Then over to main hospital and get pre op done. Spent more time waiting to get blood taken...absolutely shattered from being up early. Rambleon88 I hope you get the answers you need in light of the call you got earlier....thinking of you xxx

How did your pre-op go lovely??? Hope your resting up this evening!! 

well I got some answers, the bit they are still waiting on is the HER2 status but should hopefully know Monday. My CT came back clear which is such a relief!!! My MRI confused things a little though as apparently my left boob looks like the milkyway which has led my consultant to believe its a large area with lots of small tumors but as things stand there is still no sign of node involvement. Surgery is either going to be the 4th or the 18th, hes going to try and fit me in on the 4th as hes working a day of his annual leave to help the clinic. Looks like our breast clinic has had a recent influx in cancer diagnosis which broke my heart. Had my bloods done today for genetic testing and got measured encase I want an implant. Im leaning towards going flat and using a prosthetic boob, Ive got small boobs as is so cant imagine an implant ever sitting well next to my original boob. Xxxx

Well I'm glad you have a plan and an op date. Hopefully it is HER2 negative and all goes ahead as planned. I hope you have some relief knowing the plan now. 

My consultant said the same about an increase in diagnoses and also particularly an increase in younger people. Xx

It does feel a lot better having a plan now, and some reassurance from the CT scan, my head has been playing tricks on me something terrible. Hopefully Il be able to find out if its + or - early next week. 
Breaks my heart hearing there is such an increase especially in young people who may have such heavy decisions to make especially around fertility and so on. Xxx

Hi hun, well it's wasn't as bad as I expected to be honest, stung a bit to begin with, I just shut my eyes this time...pre op was ok, lot of waiting about until bloods got done...we were so tired when we finally got home we both had a snooze....strip stitches again and plaster....aww hun, hope your OK, didn't realise it was going to be such an operation for you hun.....glad CT and nodes clear....how you feeling now? I'm still teary it's all so new and alien like....xxc

Hi hun, well it's wasn't as bad as I expected to be honest, stung a bit to begin with, I just shut my eyes this time...pre op was ok, lot of waiting about until bloods got done...we were so tired when we finally got home we both had a snooze....strip stitches again and plaster....aww hun, hope your OK, didn't realise it was going to be such an operation for you hun.....glad CT and nodes clear....how you feeling now? I'm still teary it's all so new and alien like....xxc

Oh lovely, sending massive digital hugs to you, the whole thing is really *** and traumatic. All of us have just been thrown into this situation which no-one can ever truly prepare for. Ive been well teary today too. Its a rocky road we are all on but we will get there. Weirdly I was getting teary talking about the mastectomy to my nurse and the surgeon but mainly out of just shock if that makes sense. A month ago I wouldn't have dreamed Id be sat in a breast cancer clinic talking about removing my boob but there I was talking about just that. Hope you have a restful weekend hon, all of the adrenaline and worry is exhausting xxxx

It is draining you are so right. Keep strong hun, have a lovely weekend yourself....I'm still yawning my head off....xxxx

Hello everyone! 

hope you all had a lovely weekend.

Just had my HER2 results and their negative! I have a pre-op assessment over the phone tomorrow afternoon then bloods done this Wednesday with surgery penciled for either the 4th or the 18th xxx

Aww that's great news hun....pre-op is straight forward and bloods quite quick. Weekend was good.....hope you're feeling better in yourself xxxx

That's good news at least. And they do seem to  be organised. I hope it does go ahead on 4th. 

I've chased the results again. I'm really frustrated that I have to keep chasing them! I want to book a holiday and now at I'm at the point whereby I will just book it! Xx

That is frustrating for you, can't get why it's taking so long for you. We usually go away in September to, but that's cayboshed now, which has upset me....plus side the postman who comes to work said he missed me about two weeks ago and was hoping I was ok...so I told him and he was nice, he only came back with a bunch of flowers and said stay strong, stay positive and don't cry.....awww I thought that was so lovely xxx

Hello both! 

yes fair play the medical team seem to be moving really quickly. Its just been a lot to process and not going to lie Im bricking it at the thought of surgery but I do feel better now I have steps forward. 

 RedRuth84 oh lovely I was going to message this evening to see if you’d had results. Fingers and toes crossed for you that you’ll be booking your get away asap!! 

 TM1 bless your posties heart thats so lovely!! Its really strange telling people as it just makes the whole thing so much more real. 

xxx

I know was lovely of him. It's one of those when random people who you know but don't know that well or even anyone really when they say Hi, how are, you ok and they have absolutely no idea....I just can't say yay I'm great, when I'm not...if that makes sense....I'd rather be truthful.....this morning went quick, hope the rest of the day at work goes as quick....mind you it's bloody cold today lol xxx

Thank you. They logged onto the system, and it says estimated return date is 2 days. But I suspect that will be 3 as that will be 2 days in US and they'll be 6-8 hours behind. So I'll likely have them by the end of the week. 

 TM1  that was so lovely of your postie!  Hope you are doing OK xx

Morning Redruth84, not too bad thank you....only left my flowers at work didn't I, luckily I put them in water...I'll take them home tonight lol....xx