Bewildered

Approx a year ago,I  was woken up by my first ever nosebleed, I passed a large clot. It was horrible, yet I didn't think much of it, until  a few weeks later when I developed a very painful almost vice like sensation in my leg, when out walking my dog. I had also started to feel unwell with terrible fatigue and feeling cold all the time. I went to Dr who thought I had a blood clot, D-diner resukt also high. Scans show no blood clot, yet drs at hospital talk to me about having triggered a cancer pathway protocol, due to high D-diner and absence of clot. I  am continuing to have  regular nosebleeds and still feeling unwell. My leg remains swollen and then other leg starts to swell. High CRP levels. Referred to Rheumatology , tested for Lupus. Haematology refused to see me , prescribed iron tablets. Symptoms continued.

I am still having fatigue and start getting unexplained bruises on the back of my legs and hands. I get referred by my GP to Oncology as she suspects I may have a  form of Lymphoma. CT scans show no sign of Lymphoma. Symptoms continue,nosebleeds now increasing 2-3 daily. Still fatigue. Still bruisings. In Oct last year I was admitted to hospital for tests for severe abdominal pain. Blood tests showed high CRP yet no sign of infection. Pain was so bad I was biting down on my pillow..Pain went. 

My symptoms have iremaibed the same and recentky GP rrereferred me to Haematology , doubtful that he will agree to see me. Thought I may have a bug GP phoned the following week to say that she " had not got a clue what was wrong with me..and would be helpful if Haematology would see you ", . . A week ago I received a text message from Haematology - Oncology giving me an appointment. I don't know what to think anymore. 

I am glad to be able to share this. 

Parents
  • Sorry if I run from past to.present tense and it confusing to read. It all spilled out in a jumble. Feel.like my life has been put on pause for past year. I am an active 44 yr old and always had ene y and good heakthyuntil all this started last year. I have started to feel.like I am going crazy and that drs think I am.naking it all up. I even had one GP last year tell me that enlarged lymph nod were " not exactly the size of orangrs...so what was the problem? ...

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  • Sorry if I run from past to.present tense and it confusing to read. It all spilled out in a jumble. Feel.like my life has been put on pause for past year. I am an active 44 yr old and always had ene y and good heakthyuntil all this started last year. I have started to feel.like I am going crazy and that drs think I am.naking it all up. I even had one GP last year tell me that enlarged lymph nod were " not exactly the size of orangrs...so what was the problem? ...

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