Possible lymphoma based on enlarged lymph nodes

Hi everyone, I felt a pea-size lymph node in my neck a few months ago which has grown to over 3cm in 3months, and there are now more enlarged nodes around that first one (but smaller). I had an ultrasound scan and the notes say that the appearance is of malignant lymphadenopathy which might be lymphomatous or metastatic (thank you NHS app for having some of the notes!). I’m now waiting for another urgent appointment for a biopsy and CT scan.

From the notes it reads like it is lymphoma so I’m mentally preparing for that, I’m not sure how it could be anything else at this point?! I’m not sure why I’m posting but I’m keeping a lot of this to myself so I don’t worry people, and it’s hard waiting isn’t it?! Thinking of everyone who is waiting for an appointment. 

Parents Reply
  • Good luck ladies. The wait is so hard. I have just over two weeks to go to hear my results, although as I’ve been thinking it is some sort of lymphoma with the speed my enlarged lymph nodes have grown and the all over body itching (which is driving me mad!) then I’m calmer and more resigned to it now than a couple of weeks ago when I kept crying. It’ll still be a shock if it is but also not a shock at the same time, if that makes sense. 

Children
  • Sounds like you’re exactly where I am with your feelings! It brings comfort to know you’re not alone and that other people understand how you’re feeling. 
    Can I just ask how old are you both and do you have kids? I’m 36 with a 4 year old and 2 year old so my biggest upset at the moment is leaving them whilst they’re too young to have decent memories of me xx

  • I completely understand! I’m 37 with a 5yr old and completely share your fear. I’m trying not to think about that, because being calmer about the fact that this probably is lymphoma is manageable but when I think about my 5yr old the calm feeling goes out the window so I keep trying to put that far from my mind, but it’s hard until you know what you are dealing with.

  • Oh bless you do you feel it too. That’s the problem is that thought creeps in every so often and that’s when I break down. Hopefully these kids have got many more years to put up with us! Xx