Help! Swollen lymph nodes advice needed

Hello. I have been a visitor to these pages a lot of the past 2 months but i thought I needed to post. 

almost 2 years ago I started to get anxiety symptoms, very generalised , just feeling ‘off’ these could present very mildly or escalate to panic attacks. dizziness etc. 

I quit drinking for 3 months as I thought this may help.. it didn’t. Although my anxiety is very generalised I think health anxiety has caused me to spiral into this, I have been scared of the doctor my whole life and had a through minor health issues such as asthma and chronic ideopathic urcataria, which are now both non symptomatic . 

In January I found two swollen lymph nodes in my neck, one lower down on the left quite small (less than a cm) and one on the right ( about 1.5cm longer and thinner) even though I was petrified I patiently waited 2-3 weeks then visited my new local GP. Told her I was very anxious (was mid panic attack when I was seen) and she had a feel. She said she could feel nothing. So I tried very hard to show her where the slightly bigger lump was. She eventually found it and said it was a muscle, I disagreed, she then said maybe a small swollen lymph node and she was not concerned at all 

may anxiety calmed and I went about my life for a few weeks until now.. they still havnt gone down. It’s been 7 weeks in total now nearly 8 I’m not sure if they have grown as sometimes I feel like they have but then the next day they feel back to how they were. 

My anxiety is ridiculous especially at work and I am in a constant loop of fight and flight. I had to leave today. I am convinced I have lymphoma. I’m scared for my children and my family. If I feel any slight itch I believe it’s an additional symptom. My neck has now been aching for about a week and I am not sure it’s from touching them so much or not.. I had one night that I woke up with a night sweat but again, this could have been panic. 

I am now absolutely petrified to go back to the doctor. 

please be kind :( 

  • Is there someone who can go with you to help you through this? And to stand up to the doctors if you are being fobbed off again? 
    The armpit swelling was my initial symptom. I have had night sweats in the past but put that down to being too wrapped up. I also had my 2 year old refuse my left breast after a couple of months when he was a baby and I’m now wondering if it’s all linked. I wish I’d brought it up then.

    i really hope you can muster up the courage to go back. Anxiety definitely confuses things but the only way to relieve that anxiety will be to have the appropriate tests and scans. Sending you love xx

  • Thanks, and I’m going too I just am so bad at managing my emotions, I don’t want to speak to any one about it and it’s quite isolating. 

    my GP said there is a 3.5 week wait for an appointment :( 

  • Yeh it makes sense. I am such a worrier .. I have diagnosed myself with like 35 different illnesses in the past but this time I actually have a physical symptom and it just seems so much more real, and I’ll be honest I find it really hard to open up to my family, I don’t want to worry them .. 

  • Absolutely! 
    Each time I go for something I find myself flip flopping between it’s cancer or no it’s not.

    For me the not knowing for sure either way whilst a natural response, it certainly heightens anxiety levels.

    What is your diagnosis if you don’t mind me asking? and your symptoms?

    Best wishes 

  • So pleased that you will see your doctor. Waiting is difficult to bear and feelings of anxiety make you feel like you're losing your mind.

    Is there no one that you can speak with about this? 

    This forum is helpful in getting your feelings expressed and responded too. It makes you feel less alone as other people are going through similar experiences.

  • As previously mentioned I just don’t want to worry them.. and that sounds crazy but I’ve hidden most of my anxiety since it came on I find it quite easy to mask. 

    i think once I have spoke to my GP I will speak to them but there’s always that health anxiety voice in my head that is saying it’s just another something I have made up in my head now I’m over thinking it 

  • Bless you, I really do feel for you.

    It can be really difficult to advocate for yourself with the medical profession at the best of times.

    I ended up calling 111 because I couldn’t get into my GP. I was sent to AAU, they were amazing. In two days I had blood tests, chest X-ray, two CT scans. One month in I have had two biopsies too. I feel that I have skipped the risk of the GP dismissing my symptoms and sending me away.

  • Are you sure you want to know?!

    Well here's my symptoms:

    Palpitations, shortness of breath on exertion, fatigue, feeling worn out. It's taken over two years to identify that I've NOT got a heart problem, as suspected. Actually I've got early stage (thank God) lung cancer which is treatable by surgery (the appointment with the surgeon is next week as it happens). Talk about an anxiety trip! Anyway, I'm feeling quite calm now that I know what's wrong and that something can be done about it.

    So, there we go. My key recommendation after going through all this to get to this point is that if you feel something is wrong PERSUE it. My diagnosis happened partly because of chance findings but much to do with being persistent with my GP to refer me for tests and to see specialists.

  • See my recent post. All I can say is SNAP!

  • I bet you have a sense of relief knowing it’s early stages and that you persevered to get to this point. Wishing you all the best with with treatment/surgery.

    How could you tell the difference between shortness of breath that naturally comes from exertion and what you’re experiencing? I mean we all get a bit puffed out if we exercise. Also I find it hard to decide if I’m feeling fatigue or not because my lifestyle is very tiring!