Raised CA125 results

Hi

i I know there was at least one post created of this nature a couple of years ago but here goes.

im 34 years old have 2 kids, have always had fairly heavy periods where I pass clots etc and was told when I had scans when expecting my children (my kids are 7 and 4) that I had uterine fibroids. 

anyway fast forward the past couple of months just before or just after my periods I have been left with urinarry symptoms or some sort of tummy issues like bloating or constipation/ a bit of lower back pain so I consulted my dr and they ran a full set of bloods and I have CA125 of 49 of course I see that and I’m absolutely beside myself. I’ve got a trans vaginal and an external ultrasound next month.

im trying to be positive im trying to remember that not just cancer brings C-A125 levels up but I’m so scared.

has anyone else experienced similar or the same and it all be ok? 

Parents
  • The important thing to remember is that a CA-125 test is NOT a cancer diagnosis but the 35 limit is the cut-off level where further investigation is carried out unless scans or other tests indicate otherwise. If it was under 35 and the symptoms continued then I would be more concerned as it could delay essential treatment if malignancy was present. My wife’s reading was 88 and although it was a shock and all the other scans and tests that she had confirmed what we had suspected, the good news is that she is about to start treatment just before Easter. Additionally, more than 9 out of 10 referrals turn out to be for benign conditions but the worst part about it is the waiting game for the results. However, she was reassured by her GP that her condition whatever the outcome could be treated.

Reply
  • The important thing to remember is that a CA-125 test is NOT a cancer diagnosis but the 35 limit is the cut-off level where further investigation is carried out unless scans or other tests indicate otherwise. If it was under 35 and the symptoms continued then I would be more concerned as it could delay essential treatment if malignancy was present. My wife’s reading was 88 and although it was a shock and all the other scans and tests that she had confirmed what we had suspected, the good news is that she is about to start treatment just before Easter. Additionally, more than 9 out of 10 referrals turn out to be for benign conditions but the worst part about it is the waiting game for the results. However, she was reassured by her GP that her condition whatever the outcome could be treated.

Children