Sorry to jump on, also sorry to here about both of your recent diagnosis.. 

I have the same symptoms, only had them alot longer but have been fighting so hard for tests,(kept putting it down to my hypothyroidism even tho my levels are managed) I had a USS in August but the Dr didn't check all my lumps (I know now since my 2nd USS) my lumps all grew my specialist told me he'd see me in 6 months time in December didn't even look at any of the lumps I was concerned about, so I returned to my gp after Christmas, had my 2nd USS on 10th feb, he is concerned about a lump on my left by my collar bone, I was then put on a 2WW for a CT scan which hasn't happened yet, ENT or GP cannot tell me why but it seems it was declined. ENT have put me through for another CT and a biopsy. The biopsy isn't untill 6th March though and that was my ENT Dr fighting for it to be moved from the 18th March. I feel so let down so far by them.

Again like yourselves don't smoke, drink and not a unhealthy person. 

Rambling abit but the question I have is where your lumps painful? 

The whole of the left side of my neck is really painfull today, I believe the lumps have gotten worse since my last USS. 

Don’t apologise at all :)

I'm so sorry to hear your story. That sound so stressful and the fact that it’s been going on this long can only make your ‘scanxiety’ even more worrying.

I don’t understand why people in the NHS are so incompetent. I’m waiting for a PET scan, as I can’t start treatment or even see haematology until I have it done, and the registrar from ENT, who promised me she would check the referrals, hadn’t even made the referral in the first place so everything will be delayed. It’s only by 9 days but that’s still not good enough. I’m sure you are doing this but I’ve learnt I need to be a polite nuisance in order to get things moving.

In terms of pain, there’s no pain with my lump. I have several lipomas on my tummy and they feel more painful when I push and prod them.

Please keep us updated and don’t be afraid to push for the tests and scans you need to rule anything out. I’m keeping everything crossed for you.

9 days means you could have started treatment 9 days earlier! Finished treatment 9 days earlier. Every day counts when your waiting for tests! Just horrendous at the moment. 

I was diagnosed with cervical cancer in June last year, honestly couldnt fault the treatment id receievd from them then, just had the all clear from my first smear since, now this. 

It might just be pressure pain because my neck is currently huge with these lumps. 

I hope you get your pet scan soon and can get treatment started! I think the waiting makes everything so much worse!

Thankyou for the reply 

Sorry to hear of your problems Laur12. Have no fear, you are not alone, as I have discovered on the cancer chat forum. 

My latest personal update is that I have had the PET Scan, which showed I am Hodgkins Lymphoma stage 4. Today I had a Lung/respiratory test (needed for Chemo information), Monday I have Echocardiogram (needed for Chemo information), then Wednesday upcoming meet with consultant 9.00am and the same day, first of Chemo starts. Will be 24 weeks in total. Very upset, but will look forward to early downsize of neck lump and eternal scratching elimination............

My Biopsy was fine needle 3 samples taken at neck/collarbone site. It is quite painless as there is local anaesthetic given.

The worst so far was the PET Scan as you have to keep quite still for 30 minutes, and I so desperately wanted to scratch all over.....

My experience of the NHS has been really excellent and I am sad to read that you are both experiencing delays.

I just have to knuckle down now and prep my mind for the onslaught. 

Please take care of yourselves, and I hope your outcomes are good-to-perfect.

Sorry to hear of your problems Laur12. Have no fear, you are not alone, as I have discovered on the cancer chat forum. 

My latest personal update is that I have had the PET Scan, which showed I am Hodgkins Lymphoma stage 4. Today I had a Lung/respiratory test (needed for Chemo information), Monday I have Echocardiogram (needed for Chemo information), then Wednesday upcoming meet with consultant 9.00am and the same day, first of Chemo starts. Will be 24 weeks in total. Very upset, but will look forward to early downsize of neck lump and eternal scratching elimination............

My Biopsy was fine needle 3 samples taken at neck/collarbone site. It is quite painless as there is local anaesthetic given.

The worst so far was the PET Scan as you have to keep quite still for 30 minutes, and I so desperately wanted to scratch all over.....

My experience of the NHS has been really excellent and I am sad to read that you are both experiencing delays.

I just have to knuckle down now and prep my mind for the onslaught. 

Please take care of yourselves, and I hope your outcomes are good-to-perfect.