Hi, 

My husband had the same presentation, three years ago, take one step at a time, there are treatments and help should it be lymphoma, it's normal to be anxious, take someone to your appointment with you.  Waiting for results is horrible wish you well

Hello csmobro. Sounds like you are in exactly the same position as me. I noted a lump at my left collarbone just after Christmas, and my GP dragged me in quickly for a feel. She set a 2-week consultation at the hospitall. Since then I had a CAT scan and now 5 days ago had a biopsy taken . I am waiting very nervously for the results, which I am told take 7 to 10 days. I also had a blood test taken for JAK2 (???).

Other symptoms that I have been suffering are EXTREMELY bad itching with absolutely no rash all over my body, for the last 4 months. The GP has tried 3 separate courses of antibiotics, with zero result. She also tried antihistimines with equally zero result. (I was for one week taking 5 tablets per day!!). My energy is quite low, and the annoying thing is that until October I was quite fit, using a Bike trainer, and also out on the road with my mountain bike.

I really hope the best for you, and you need to take comfort that you are not alone.

Please update your situation when you have, hopefully, good news!

Hey Pippins, I’m so sorry to hear that you’re in a similar position to me. I can’t believe you’ve been experiencing symptoms for so long. That must have been awful for you. 

Another similarity is how healthy we are. I lost 10kg of weight last year. I eat well, workout 4-6 times a week and was the healthiest I’ve ever been and now this happens. It just makes this all feel so surreal. I had prepared myself for the worst and when they told me what they thought that it is most likely lymphoma I must admit I cried but it was almost like a release after a 2 weeks of waiting for this day.

I’m keeping everything crossed for you and your message genuinely means a lot too. Let’s keep each other updated and keep everything crossed  

Hi csmobro. I have had results from Biopsy and CT Scan. I am afraid to say it is Hodgkins Lymphoma stage 3. Yesterday I had a P.E.T. CT Scan, due a consultant face-to-face next week , and then week Monday an Echo-cardiogram. They can then formulate a program of drugs to set me on. You can imagine that some tears fell from a 73 year old Male. My wife is being absolutely wonderful in support. At the moment everything is surreal, and I am very slowly having to accept that I have Cancer.

I hope your findings are not as bad. Do let me know. Good Luck.

Im so sorry to hear about your diagnosis  that must have been such an awful shock for you. Crying is completely natural. When I had my ultrasound, they told me what they thought it was and I cried. I’m so glad your wife has been so supportive. It makes such a difference.

So do you know when you’ll likely start treatment? Were the recent results for a core biopsy? I’ve just had my fine needle biopsy results and they have confirmed it is b-cell non-Hodgkins lymphoma but they need to do a core biopsy to find out the exact type. I have that on Tuesday but I have no idea when I’ll have my PET scan. My first meeting with the haematology team won’t be until March 1st and I have no idea when I’ll start chemotherapy. It’s my 40th on March 19th so Sod’s Law it will start around then. Having said that, I just want to start as soon as possible and try and beat this thing.

Thank you for updating me and I’m so sorry you’ve had this news. I’m keeping everything crossed for you

Im so sorry to hear about your diagnosis  that must have been such an awful shock for you. Crying is completely natural. When I had my ultrasound, they told me what they thought it was and I cried. I’m so glad your wife has been so supportive. It makes such a difference.

So do you know when you’ll likely start treatment? Were the recent results for a core biopsy? I’ve just had my fine needle biopsy results and they have confirmed it is b-cell non-Hodgkins lymphoma but they need to do a core biopsy to find out the exact type. I have that on Tuesday but I have no idea when I’ll have my PET scan. My first meeting with the haematology team won’t be until March 1st and I have no idea when I’ll start chemotherapy. It’s my 40th on March 19th so Sod’s Law it will start around then. Having said that, I just want to start as soon as possible and try and beat this thing.

Thank you for updating me and I’m so sorry you’ve had this news. I’m keeping everything crossed for you