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Lymphoma worry

celtictrace
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I discovered a lump in my neck in September and recently had an ultrasound scan and biopsies. I’m anxiously awaiting the results and was wondering if anyone has any coping mechanisms they can recommend?  I’ve had a call from my GP to say that there were two enlarged lymph nodes that are suspicious and I should get results and an urgent appointment within 2 weeks. I’m only 6 days in to the wait and am afraid I may go mad - I feel panic and hysteria rise up in my throat when I go out and can’t wait to be back at home where I feel safer. Can anyone relate to this and if so, how can I get through the wait without completely melting down? Thanks in advance for any tips <3

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    No tips unfortunately, but going through the same thing which started in august/September. Pain and pressure has gradually got worse. 

    Do you have any pain with it at all?

    Like you, I am thinking the worst and freaking out, I cant take my mind off it because the feeling is always there.

  • Offline in reply to Dhicks19

    Aw thanks for replying - I had no pain prior to the biopsies but have been having problems with my ears and balance for some time. I wasn’t too concerned until the scan and biopsy but I’m now besides myself and am struggling to act “normal” around people (which is why I think I feel safer at home). I’m very tearful and feel foolish if I break down in front of anyone as I don’t know if I have anything to cry about yet.

    Are you also waiting for biopsy results? Sending love and good luck vibes

  • Offline in reply to celtictrace

    Understand completely,  it's horrible, but at least we have acted on it and getting it sorted. Do you have family or a partner for support? 

    I haven't had a biopsy yet. I did go to ent on the 2 week Urgent referral but she felt my neck and thinks its reactive, but its gradually got worse over the following months with increasing pain and pressure. 

    I've seen a doctor 6 or 7 times about it and everyone has said it's probably muscular, but I just know something isn't right. I have a neck mri planned for 2 weeks time and just been referred for an ultrasound too (non urgent).

    Good luck and hang in there. 

  • Offline in reply to Dhicks19

    I have a partner and lots of friends and family for support but I also don’t want to worry them. It’s a horrible situation to be in.

    good luck with your mri - hope you get answers and some reassurance  

  • Offline in reply to celtictrace

    Hi how did you get on with your results I have a lump on my neck it's not painful it does move if I push it like you I am very emotional I have my ultrasound next week and I'm terrified about what it will be 

  • Offline in reply to Lucy73

    Hi Lucy - I totally understand your fear as I was a total wreck before my diagnosis.  All I can tell you really is that the period of waiting after the ultrasound was the worse for me.  Once I had my diagnosis I found an inner strength from somewhere and just went with the flow.  I’ve just had surgery to remove lymph nodes in my neck and some of the base of my tongue. I knew deep down at the time of my ultrasound that it wasn’t going to be good news for me, 3 biopsies were taken there and then, and I was told that they were suspicious.  

    Hopefully your ultrasound will show an innocent lump and you can move on and forget about it, and I will keep my fingers crossed for you.  Try and read others posts on here though if it does turn out to be suspicious, as there are so many positive stories to inspire you, and a huge amount of support too.  Try and keep your mind occupied between now and then and please let me know how you get on.  Wishing you all the luck in the world xx

  • Offline in reply to Lucy73

    Hi Lucy, how does your lump feel, I can't stop stressing over mine, I'm waiting for an ultrasound letter to come through but I'm so scared and nervous! 

  • Offline in reply to Laurenjess

    Hey, just wanted to say I had a lump (lymph nodes) and also a new raised area under my skin in the right side of my neck. I eventually had an MRI and an US but apparently completely normal.

    Good luck. I know how horrible it is waiting and not knowing.

  • Offline in reply to Dhicks19

    Thank you! Mine is just above my collarbone but is pea sized and does move, unfortunately I keep googling it and it's giving me the worst outcomes, I'm terrified! 

  • Offline in reply to Laurenjess

    I did the same thing, and because I have other health issues, I was convinced it would be bad news. Try to stop googling it and keep busy. I also have a pea sized lump in my neck that is movable too Fingers crossed for you  

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