CA125 results worry

Hi all…

I’ve been experiencing unexplained fatigue and dizzy spells, along with irregular (and now have seemed to have stopped) periods. I also have slot of bloating and cramps which come and go.

After many blood tests, they checked my CA125 which was at 90.

I am extremely nervous and this wait for the scan feels so overwhelming. 

I’m wondering if anyone else has any experience they can share?

And if anyone else has experienced similar symptoms - particularly periods stopping - and a high CA125. 

thank you 

Parents
  • Hi sorry you are going through this. I have had bad pelvic pain since last may left side, and now right. I have tested positive for IBS, but my periods have become irregular and now this month it has not arrived at all! I have had scans found a cyst but the cyst has since gone. I was seen my urgent gynae back in mat last year as a ct scan for suspected kidney stones as I tested positive for blood in urine showed a mass in pelvic left area. But nothing on scan.

    So I am left with questions, why did I have blood in my urine, what was the left sides mass they say on ct that they referred me to gynae for but the gynae couldn't see!  I don't believe the pain I am getting now is just IBS, my ibs is normally loose, I am now constipatied and bloated all the time, pain in my pelvis all the time and lower back. Also pretty sure is does not mess your periods up.

    Anyway I have asked the drs for blood so they are testing the CA125 and others now.

Reply
  • Hi sorry you are going through this. I have had bad pelvic pain since last may left side, and now right. I have tested positive for IBS, but my periods have become irregular and now this month it has not arrived at all! I have had scans found a cyst but the cyst has since gone. I was seen my urgent gynae back in mat last year as a ct scan for suspected kidney stones as I tested positive for blood in urine showed a mass in pelvic left area. But nothing on scan.

    So I am left with questions, why did I have blood in my urine, what was the left sides mass they say on ct that they referred me to gynae for but the gynae couldn't see!  I don't believe the pain I am getting now is just IBS, my ibs is normally loose, I am now constipatied and bloated all the time, pain in my pelvis all the time and lower back. Also pretty sure is does not mess your periods up.

    Anyway I have asked the drs for blood so they are testing the CA125 and others now.

Children
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