Very raised CA-125 level

I've got a 10cm cyst on my left ovary that has ben causing me pain since last December. I had an ultrasound which identified it in February and thought it could be endometriosis. Then I waited for 8 months until the end of September to see a gynaecologist about it. She did another ultrasound which confirmed it was still there and said it wasn't showing much signs of endometriosis and just likely to be a mucinous cyst and they weren't concerned about it being anything more sinister, however I should get it removed.

She also did a bunch of blood tests that day which all came back fine except my CA125 which was raised so she booked me in for an MRI that I'm still waiting for the results from. 

However at the time she didn't say how raised my CA125 levels were and I've just seen that they're at 441 which has absolutely terrified me. 

I've got a laproscopy in 2 weeks to remove the cyst however I'm now terrified that it could be something much more serious than just a cyst - has anyone been through something similar?

For context, I'm 27 and I've always had irregular periods and don't really have any symptoms of endometriosis. 

Thanks!

Parents
  • Hello try not to worry I know it's easy for me to say that.  A few years back I had this test done as my GP was queering ovarian cancer my markers came back high. I was red flagged along with other symptoms of irregular periods etc 

    I then paid private to see gynecology I found out I had polycystic ovaries and I was also pregnant.  I asked the gynaecologist why high ca125 and he explained ca125 can be raised for many many reasons. Mine came back down again just always worth keeping an eye on them but I had two factors at play in putting my ca125 up so it could be cysts causing the increase in your ca125.

Reply
  • Hello try not to worry I know it's easy for me to say that.  A few years back I had this test done as my GP was queering ovarian cancer my markers came back high. I was red flagged along with other symptoms of irregular periods etc 

    I then paid private to see gynecology I found out I had polycystic ovaries and I was also pregnant.  I asked the gynaecologist why high ca125 and he explained ca125 can be raised for many many reasons. Mine came back down again just always worth keeping an eye on them but I had two factors at play in putting my ca125 up so it could be cysts causing the increase in your ca125.

Children
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