Very raised CA-125 level

I've got a 10cm cyst on my left ovary that has ben causing me pain since last December. I had an ultrasound which identified it in February and thought it could be endometriosis. Then I waited for 8 months until the end of September to see a gynaecologist about it. She did another ultrasound which confirmed it was still there and said it wasn't showing much signs of endometriosis and just likely to be a mucinous cyst and they weren't concerned about it being anything more sinister, however I should get it removed.

She also did a bunch of blood tests that day which all came back fine except my CA125 which was raised so she booked me in for an MRI that I'm still waiting for the results from. 

However at the time she didn't say how raised my CA125 levels were and I've just seen that they're at 441 which has absolutely terrified me. 

I've got a laproscopy in 2 weeks to remove the cyst however I'm now terrified that it could be something much more serious than just a cyst - has anyone been through something similar?

For context, I'm 27 and I've always had irregular periods and don't really have any symptoms of endometriosis. 

Thanks!

Parents
  • Hi lulubr,

    Welcome to Cancer Chat. I hope you're able to hear more soon from the results you are waiting for, to get the answers you need. I know it's not easy when waiting and when dealing with uncertainty.

    In the meantime, if others here have similar experience to share then hopefully they'll see your post and you'll get some more replies soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

Reply
  • Hi lulubr,

    Welcome to Cancer Chat. I hope you're able to hear more soon from the results you are waiting for, to get the answers you need. I know it's not easy when waiting and when dealing with uncertainty.

    In the meantime, if others here have similar experience to share then hopefully they'll see your post and you'll get some more replies soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

Children
No Data