Sorry for jumping in but I’m 26 and had symptoms of constipation, change in bowel habits, slight weight loss. I recently had a stool test with 83 calprotectin. I have been advised to do another test in 2 weeks but the waiting is driving me nuts.

Just thought Id up date on the repeat calprotectin i did. It came backup as 46 so under the threshold.

that's really good news :)

That's great news

Hi everybody, I hope everyone's doing ok. Or if anyone has had bad news I hope your on the road to recovery .

Hi Steve, yes doing fine thanks, today we went to hospital to see what this cyst on Marts spleen is, they think it’s not related to his lymphoma but another ultrasound in 6 months to see if it’s still growing, so as of now all his other problems are ok and off we fly to Tenerife next month while we have the chance.
I hope everyone else is doing ok and Helen how are you getting on? 

Hi everyone. Finally got an appointment yesterday after chasing hospital constantly. I'm going into hospital for my CT colon scan on 11/12/23 they will scan all my organs at the same time apparently according to my Consultant that's why he wanted to push for this scan for me. It was rejected initially because im too young (even though I'm 51 in a couple of weeks) so that's a relief the Radiologist finally agreed. But also worries me strangely xx

Hi everyone. Finally got an appointment yesterday after chasing hospital constantly. I'm going into hospital for my CT colon scan on 11/12/23 they will scan all my organs at the same time apparently according to my Consultant that's why he wanted to push for this scan for me. It was rejected initially because im too young (even though I'm 51 in a couple of weeks) so that's a relief the Radiologist finally agreed. But also worries me strangely xx

Hi Amanda, good that you’ve at last got an appointment, not long to wait. If it’s the same as my husband had CT scan of the colon (I’ve forgot the proper name) he said was absolutely fine, so I hope it’s the same for you, you obviously don’t get the results there and then though so a bit more waiting. Good luck Xx

I hope everyone else is doing ok, how are you Helen and Sam xx

No it's quite quick now thankfully. My GP surgery were getting annoyed with them as I had clearly been forgotten. I don't know the letter calls it a CT Colon scab but I know when I saw the consultant he said they would scan all my organs to see if they could see if there was anything lurking!! Xx

You having your scan same day as I have my sigmoidoscopy so we'll both fingers crossed have things go well..is really good they finally sorted an appointment and not too long to wait for it either...when I had my CT scan they did the same and scanned all of my torso to.check everything out..was very quick and they said they think good to do them to rule things out but made me worry too why they were doing it...but I am glad now I did have it done xx

Hi Sue, yes I didn't get my results there and then but they rang me just over a week later.to say all was OK but did feel a long wait...

I'll.be OK I guess after Monday as been waiting several weeks.now for the sigmoidoscopy and just want it to take place now!! 

Hope all good with you? Xx

Yes a big day for us both. But a bigger one for you. Mine is called a CT colongram they are saying now they put a tube up my bottom and then do a CT scan too with a dye of iodine. Sounds lovely lol. They scan all my organs from the top of stomach to the top of my thighs apparently. So a good one but it worries me how he convinced the Radiologist to agree to it with me being too young for this scan xx

Sounds lovely! All these are so unknown aren't they but amazing what they can do..hope your restricted diet not too bad...I have got to start in morning..so going to enjoy dinner and some prosecco tonight..do you get any sedation with yours? I didn't with my CT scan as they're not uncomfortable..

I guess as they don't know where your pain coming from this procedure would be a good option..it might well be like me in that they only offered the sigmoidoscopy as they reviewed my results again and a different Consultant said this would be a good thing to try...so the radiologist might well have taken  your case to an MDT meeting and this colonogram was proposed as a good thing to do xx

How are you getting on wity your diet. I started mine today and then I have to start the medication today too. The lady I spoke too said I get a muscle relaxer into my drip thing in my arm to make it easier.

Yes you might be right. Anyway hope you are OK xx

How are you getting on. I've just took my first lot of medication. Got some stuff to drink in the morning and more to drink tomorrow night and the last lot Monday morning. 

When do you have to start yours xx

Hiya, I have to start mine at 7pm...gruesome stuff but has to be done..hope yours is going OK? Xx

That would be good to get a relaxant, I'll have sedation they have said which I'm glad about xx