Hi Steve

I so hope I have same result as you...positive FIT score but no real symptoms..no change in loo habits but occasionally blood due to I think piles..freaking out and Dr Google making me worse!!!I've read 90 per cent of positive results not cancer but of course worry  I am in the 9%..your story is a positive one very much so...kind regards Helen

Hi Helen, yes Google is the worst thing to look on for making you paranoid! I was convinced I had it. I'm sure it's 9 out of 10 colonoscopy checks turn out to be other things. 

The blood I had occasionally was bright red so lower down the bowel. I know what it is now though and the doctor told me there and then. I think if the blood is darker or tar coloured then it's possibly something more sinister? Mine only seemed to happen after multiple bowel movements and by multiple I mean literally 5 times in 1 day and always after I'd consumed a lot of alcohol. Makes me sound like an alcoholic which I really am not lol.

You need to remember though that the fit test isn't a cancer test. There can be multiple places blood can come from.

I hope you have a good outcome. 

Glad all went well Sue for your husband..fingers crossed results are good xx

Just spoken to my GP who says the letter to them just said it was a positive result and didn't give a score..so probably good to not know..she said to try to not worry, things get picked up early but big majority don't have anything to worry about..she says she only knows 2 from the surgery where they found very early cancer and both doing very well.. I too am making myself ill worrying and appetite gone totally and my stomach all over the place too!! 

She's right. Most people are fine. My gp said the same tbh. 

I'm sure I read that it's one of the most treatable cancers? 

I got to the point where I resorted to taking more of medication for my back just to chill me out and relax me as I was flapping that bad. Sad really! You just want to go to sleep, wake up and the nightmare of the worry to be gone.

yeah i have read about how treatable it is...doesn't make me feel any better though - i have been using meds i was prescribed for a bad back which are Valium but called something else as i'm totally flapping and totally stressing every single minute of the day.... constantly on my mind..yes i agree i just want to get the worry gone as is horrible..

I heard a few years ago everyone got sent for the colonoscopy as part of routine checks at 55 so there was none of this worrying and waiting...

When do you have your colonoscopy?  Sorry I can't remember now if you've said when.

Hi...screening appointment this Friday then it said colonoscopy would be scheduled for 2 weeks after that..will ask if any chance it could be sooner..

What’s a screening appointment Helen, hope my husband hasn’t missed something out. He had a CT scan on the 26 Aug still waiting for it to be read, then his bowel thing on the 11th, we have to wait for results of that as it was a virtual one. Good luck Helen xx

Hi sue, the letter I had says it's carried out by a nursing practitioner over the phone to ask you questions I think relating to suitability for a colonoscopy, for me to ask questions and I think they ask questions about lifestyle and health and then they explain what happens at a colonoscopy...so I'm guessing that this wouldn't be the same for your husband perhaps? Thank you..getting more worried by the day xx

Ahh yes, he saw the surgeon for some reason, maybe as the doctor had done the FIT test, I remember you saying now lol. I just want some results, everything seems to take ages considering this started early July under the 2 week wait and here we are in September. At least when you have your colonoscopy you should find out the same day if they see anything, maybe not what it is but you’ll have an idea. My husband doesn’t worry, I think I worry for us both .Fingers crossed for you and us. 
Hi Steve, I hope things are going good for you now, get another holiday booked X

My score for my Fit test is 400 with symptoms of bleeding on tissue for 5 weeks, lower abdominal pains, blood in stools and exhaustion all the time just wanna sleep during day and no energy to do anything anymore, got my phone assessment tomorrow morning, am really scared as only 38 

My score for my Fit test is 400 with symptoms of bleeding on tissue for 5 weeks, lower abdominal pains, blood in stools and exhaustion all the time just wanna sleep during day and no energy to do anything anymore, got my phone assessment tomorrow morning, am really scared as only 38 

Oh Sam..I do hope you get some reassurance from your phone screening.. especially as you so young.. dont know how you got the score as my GP says they didn't get any scoring..I guess visible blood is maybe not as worrying as occult as could easily be hemorrhoids..and tiredness could be all sorts of things..let me know how you get on x

I found it on my NHS app under test results, and thank you i will let you know how it goes tomorrow its first thing at 8.30, I'm just worried sick don't think I will be able to sleep tonight either x

My app shows nothing and when I rang GP all they said was that it was a positive result and they didn't have a score..my appt 9am Friday for phone assessment..do let me know how it goes...am relying on sleeping pills I had for another reason a year ago but otherwise I'd be same..I know leaflet I was sent said 91 per cent of positive results are nothing serious but like you all I can do is worry incessantly!!! Let me know please how you get on and ill keep all my fingers crossed all is OK x

I will keep you to date tomorrow with what they say to me, I haven't had anything in post about it all when GP phoned me to tell me she said for me to book in an appointment with her once I have had my phone assessment so we can talk about everything which didn't sound positive either x

So just had my phone assessment, I have got to have a Colonoscopy and CT scan within 2 weeks x

Hi Sam, good that you've had that appointment and that will be done in 2 weeks time..think that is standard time so not like they're rushing you in any earlier..expect your gp just wants to check how you are after the screening appointment..hard to not worry isn't it...but hopefully a chat with GP will be helpful x

Yeah that is the normal time scale, but yeah it's hard trying not to worry x

I know you feel like your in a terrible place right now and we've all been there. There is light at the end of the tunnel.