Living in a waiting world

Do you ever feel as if you are living in a different world from other people? - in a waiting world? You try to get on with ordinary, normal everyday things, but the unknown is hanging over you and really in a way you are just sort of existing in this waiting world?

  • Hi Mary,

    YES! That's exactly how I feel right now. I can't concentrate on any normal everyday tasks. Work is bottom of the pile, meal planning/food shopping, washing, keeping the house tidy....all gone out of the window! I don't know how to stop this inner turmoil and worry. It's overshadowing everything! What is it you are waiting for and how long do you have to wait? 

  • Yes!!!!!! 100% this!!!!

    Hi Mary. 

    I completely understand what you are saying. I started a new job today and usually I'd be a wreak with nerves but this morning was total auto pilot mode. Until I get through my appointment on Friday I think I will continue to sleep walk through the day to day.

    Can I ask what it is you are waiting for? Mine wait is for my 2ww breast clinic referral.

    Xxx

  • I shall reply to both of you the the same. Thank you for understanding. I was first seen by a GP last April. I have had blood tests, FIT, colonoscopy (clear) and a CT scan, various appointments and letters. In July I had a biopsy the results of which were inconclusive. Next Tuesday I shall have another biopsy, then I shall be waiting for results. I know millions of people in the world have far worse worries, but thank you, again, for understanding my waiting world and empathising with it.

  • I shall reply to both of you the the same. Thank you for understanding. I was first seen by a GP last April. I have had blood tests, FIT, colonoscopy (clear) and a CT scan, various appointments and letters. In July I had a biopsy the results of which were inconclusive. Next Tuesday I shall have another biopsy, then I shall be waiting for results. I know millions of people in the world have far worse worries, but thank you, again, for understanding my waiting world and empathising with it.

  • I know exactly what you mean. Since I was referred to gynae in June 22, its been tests, scans and waiting for results, just about every month. At the present time I am awaiting results from CA125 test, referral appointments from a specialist liver unit (since January) and local hospital since Feb for something else and I've now gone on the waiting list for hysterectomy with ovaries also removed as the non-surgical approach has not worked and they cannot be 100% sure there is no cancer until after the op. I feel like my life has been on hold for the past year and will be for the indefinite future 

  • I forgot to say that I have been told the biopsy will be sent to histology and the results would be available sometime up to ten days. Then the team will discuss it and then ring / send an appointment for me.

  • completely understand this, finding it so hard to try and focus on anything other than my fears!! hope you are well!! 

  • That is awful. I am so very sorry.

  • Thank you. I feel very well and when anyone says "how are you?" and I say "very well, thank you", because that is how I do feel at that time. Then the shadow comes over again!

  • yes!! i completely understand, i have no other symptoms apart from a lump, and when people ask me how i am i say fine for the exact reason u do, but then it all floods in, when they have forgotten about it its still all that i can think of once its brought up! wishing u the best of luck