Breast pain….almost 18 months on and still no answers

Hi there,

I am at my wits end again with worry today.

I’ve had breast pain and changes since March 22 when I was referred to breast clinic. To cut a long story short I’ve had two clear mammograms in 2022 and an ultrasound on top of left breast where some nodular tissue was found but was given the all clear and diagnosed with non cyclical pain. I’m 59 years of age and post meno an£ took HRT for about 9/10 years but stopped earlier this year due to fear.

Sadly the pain has never gone away and I have had left arm pain and a tightening sensation in same area for a few months now. Been at GP several times and diagnosed with nerve pain? My nipple has now fully inverted although I’ve always had this partly so doctors assume that this is not really a change as such. I know my body and despite reassurance I know there is something wrong.

Today the pain has been severe so I called my GP who referred me under routine referral last month but I’ve still not had an appointment through yet. I’ve been given the number for hospital and will phone them tomorrow to chase this up. My left underarm area is swollen today so I am sick to the pit of my stomach now imagining all sorts. My partner had a look today and I can tell by the look on his face that he is now worried too.

I am worried sick now…can’t stop crying as I feel I have not been strong enough to push for further investigations. I hope someone can listen to me anyway as I can’t worry my family with this. That feeling in the pit of my stomach is now there permanently.

sorry for ranting 

  • Hello PaulineMc, 

    Poor you - you're not ranting at all - this is what this forum is for, to share your worries and anxieties with others who will be able to relate. It's a good idea to phone the hospital and to chase this up. I hope you've had a chance to do it and that you have a bit more clarity on all this by now. 

    I can understand why this is making you so worried but don't blame yourself at all as I am sure you are in the best possible hands and that they will be carrying out the necessary investigations. I am keeping everything crossed for you that you finally get some answers. If you still feel you are not getting anywhere, it might be worth trying to seek a second opinion and you can find out more about this on this page

    Other members of our community will understand what you are going through having been through something similar themselves and I will now let them come and say hello and share their story with you. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you so much for your reply Lucie. I am waiting for a call from the hospital to give me an appointment so hope to hear soon. I am in so much pain and so so worried 

  • Good morning Pauline. Just wanted to say "Hi" and to offer what support I can at this very worrying time for you. I really do sympathise with your situation. It took me an age to finally get my diagnosis after my gp messed up my referral to the breast clinic. It took a change of gp to get the correct referral but by then Christmas got in the way and it wasn't until a full 5 months later that I got my appointment for the mammogram that revealed the cancer. As you are now talking to the hospital I hope your appointment date will be set very soon. I have to say that once I had the biopsy following the mammogram everything happened very quickly and it was just 12 days later that I had my surgery. Please try not to worry, easier said than done I know, but worrying doesn't change things. Remember all may be well and if it is cancer be reassured that it will be dealt with quickly. Do keep us posted here on this forum as whatever your outcome there are always people here who will support you.                         Wishing you all the very best, I will keep my fingers crossed for you. Take care, Mog, xx

  • Oh Pauline,

    I am sorry to hear that your pain has been so severe today. As you've now had 2 mammograms and an ultrasound, it might be worth asking if you could have a biopsy, when you attend the clinic. It may not be possible, when the others tests haven't found a lump, but no harm in asking.

    I hope that you hear from the hospital soon.

    Kind regards,

    Jolamine xx

  • Thank you so much Mog x I’ve just had a call from the hospital to let me know that the consultant has reviewed my imaging from last year and has triaged me as being a routine referral! I’m expected to hear in the next two weeks of my appointment date. I’m beginning to think I am imagining this pain ( hope so in a way) but not convinced. I really appreciate you taking the time to respond to me and it’s lovely to have my hand held through this torturous time x

  • Hi Jolamine thanks again for your kind words. You’ll see from my reply to Mog that I will need to wait for my appointment now. It’s a very worrying time for me and taking a terrible toll on me mentally. I have myself dead and buried to be honest and I know how ridiculous that sounds. Thankfully I am managing to distract myself with work and I’m going for a very long walk later x it is so kind of you and the other the lovely ladies here, to take the time to virtually hold my hand through all of this xx