Vacuum Assisted Excision for B3 breast lesion with lobular neoplasia. Struggling with wait for results!

Hi all, I'm new to this forum. I'm 41 and in July I went to the GP as my nipple was very itchy. The GP examined me and found a lump and I was referred on the 2WW pathway to the breast clinic where I had an ultrasound, mammogram and then a core needle biopsy as they found a lesion on the ultrasound (mammogram was clear). The radiologist assured me that he was certain it was either a fibroadenoma or a papilloma and not to worry. I went back on 2nd August for results and was told it was a confirmed benign fibroadenoma but also had atypical cells. The letter I received stated 'classic lobular neoplasia B3 lesion with atypia which is indeterminate or could possibly be cancer'. I went back on 22nd August to have the lump removed by vacuum assisted excision and am now waiting for the results which I should get on 5th September. I am trying so hard to be positive but I'm finding it so difficult. I am trying to keep busy to take my mind off it but it's hard. I just can't quite believe this is happening. 

My husband doesn't really want to talk about it, he just tells me to be positive and think the best and try not to worry, so I thought coming on here might help me. 

Thanks for reading my story and if anyone has any similar experience to share I'd love to read it. Also, if anyone could suggest any questions I should ask at my appointment that would be great (I know some will depend on the diagnosis!)

Lastly, I am on HRT - does anyone know if I should stop this? I'm on it not for menopause but for severe PMS in conjunction with the mirena coil. I am terrified about my mental health if I have to stop this! 

Parents Reply
  • Hi! I had good news. They didn't find cancer! There are atypical cells which means I have to have yearly mammograms and puts me at slightly higher risk than the general population. I did say that I ink there have been some changes in my nipple since I was last seen but they said they couldn't see it. They said to keep an eye on it and if I'm still worried I can go back and have a punch biopsy to put my mind at rest, so it's good to have that option! 

    Thanks so much to everyone for your well wishes and support. It means a lot and I'm just so glad the wait is finally over!! 

    Sending best wishes to anyone still waiting for results :) 

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