Vacuum Assisted Excision for B3 breast lesion with lobular neoplasia. Struggling with wait for results!

Hi all, I'm new to this forum. I'm 41 and in July I went to the GP as my nipple was very itchy. The GP examined me and found a lump and I was referred on the 2WW pathway to the breast clinic where I had an ultrasound, mammogram and then a core needle biopsy as they found a lesion on the ultrasound (mammogram was clear). The radiologist assured me that he was certain it was either a fibroadenoma or a papilloma and not to worry. I went back on 2nd August for results and was told it was a confirmed benign fibroadenoma but also had atypical cells. The letter I received stated 'classic lobular neoplasia B3 lesion with atypia which is indeterminate or could possibly be cancer'. I went back on 22nd August to have the lump removed by vacuum assisted excision and am now waiting for the results which I should get on 5th September. I am trying so hard to be positive but I'm finding it so difficult. I am trying to keep busy to take my mind off it but it's hard. I just can't quite believe this is happening. 

My husband doesn't really want to talk about it, he just tells me to be positive and think the best and try not to worry, so I thought coming on here might help me. 

Thanks for reading my story and if anyone has any similar experience to share I'd love to read it. Also, if anyone could suggest any questions I should ask at my appointment that would be great (I know some will depend on the diagnosis!)

Lastly, I am on HRT - does anyone know if I should stop this? I'm on it not for menopause but for severe PMS in conjunction with the mirena coil. I am terrified about my mental health if I have to stop this! 

  • Hi . From experience I can say that only who deals with this kind of problems can understand the anxiety and fear of waiting .

    I struggle with accepting that I had cancer in me . But hey let's stay positive ,things can be bad but treatable. Finger crossed for you!!!

  • Hi , it sounds as you have been through the mill already ! Please just try to keep as busy as you can , walk on the beach , park ,anywhere in the fresh air ! The waiting is awful ! It’s looking positive so far x Hang fire with stopping your HRT , the doctors will advise you if/ when you have to stop it. I really wish you well xx 

  • Thank you for your reply LCR. I really appreciate it 

  • Thank you so much for replying to me. I've never experienced this kind of waiting anxiety before and I don't know how to deal with it. I am trying to stay positive and watching comedy programmes is helping me to laugh!

  • Moo 

    min so sorry you are on the waiting game I totally understand this I had breast cancer july 22 some time ago now , for many months I e been back to my crazy life , wishing you nothing but good luck for results hete to chat or help lovely take care love Lara xx 

  • Hi Lara,

    Thank you so much for your message. It really helps. I'm sorry to hear that you have had breast cancer but amazing that you've been back to your normal life for months now. Congratulations for beating it quickly! 

    I think I'm finding it tough because even if it's not cancer, it's still been confirmed as atypical which puts me at a higher risk of cancer in the future. So I'm assuming best case scenario will mean monitoring which can only lead to more anxiety....

    Do you have any advice about how to deal with the anxiety? 

  • Moo 

    I’m so sorry you will be going through this how do they intend to monitor? 
    i coped by trying to ignore it to be honest it was hard on times but I choose to continue to work carrying on with my life like it wasn’t happening it worked for me don’t no how but it did , looking back I don’t no how I done it xxx 

  • Well I don't know yet, it will depend on what the histopathology results show but if not cancer then I think they do yearly mammograms/ultrasounds but not 100% sure. Just feel like I'm trudging through each day, feeling sick, not sleeping......10 days to go! X

  • The waiting is the worst bit , once you know what you are facing it’s easier somehow . Try and take one day at a time , keep busy , treat yourself to something , manicure , new lipstick . Sending a hug xx

  • Thank you LCR. I will concentrate on booking some things in. Last weekend I spontaneously booked a last minute break with my mum and my kids to take my mind off of the excision (which I had on Tuesday). It definitely helped!! Shame I can't book another one!