13 year old possible lymphoma

Hi,  about 3 months ago I noticed 2 lumps on the side of my 13 year old sons neck,  bloods were taken and all clear, doctor wasn't concerned so left it at that.

Fast forward 2 months later and I found 3 more lumps, one on the same side and 2 on the other.  Back to doctor, bloods repeated and again normal.  

After many phone calls and pushing, took him back again this morning and different doctor was much more concerned, also noting one large swollen tonsil.  I'm guilty of googling and know this is a bad sign.  2 week rapid referral made to paeds for further investigation.  

Doctor said the lymphnodes don't feel like typical hard cancer lumps but there's no way of knowing without further testing.  My son feels fine in himself, no night sweats or weightloss etc. 

I'm.trying to stay positive but months of swollen lymphnodes and one enlarged tonsil is really really worrying me. I can't think about anything else. 

Has anyone else had these symptoms and it been ok?   Everything I read says these symptoms combined usually a red.flag for cancer and I'm terrified!   

Parents
  • Yeah, don't use google. You're more or less searching out a cancer diagnosis unwittingly. It's what Google does. Google can not, and will not tell you what your kid hasn't got. Cancer generates the most traffic, and because google is ad driven, BOOM, you and everyone you know now has cancer regardless of symptoms.

    I'm 48, and used to get a lot of throat issues as a teen. to this day, i still have 3 nodes that are enlarged. 1 of those nodes always causes concern with doctors who i haven't seen in the past. But it's been there since i was 16 and hasn't changed. It's very, very common that node that enlarge, to remain enlarged for life. A lot never return to their previous state. Seriously, if you're gonna google something, google that. It is very common. Your son's nodes may never return to their pre infection state. But he's gonna be seen, which is good, and you'll be able to get on with your life, so I wouldn't be overly worried. He has age on his side when enlarged nodes are even more common.

  • Thank you for your reply, and yes I definitely have learnt the hard way when it comes to Google.  Paediatric appointment is tomorrow so we will see what happens.  I'm feeling a little less worried but still can't shake the feeling that something might be very wrong because of the one swollen  tonsil as well as the nodes.  Fingers crossed for tomorrow morning x

  • Update after paeds appointment...

    Doctor was very reassuring that she doesn't believe its lymohoma,  she examined him and said there were no red flags and in lymphoma with children he would have shown some.red flags by now.  She is still.refering him to ENT about the tonsil and for a ultrasound ans chest xray (but I think this was to reassure us rather than real concern)

    I still.have some niggling anxiety because there's no real answers to what could be causing his symptoms, especially the tonsil but hopefully that will be resolved with ENT.  So still concerned but feeling reassured.

  • Hiya, very pleased to hear it. It's your child, so it's more than understandable you still have niggles and anxiety surrounding their health. Our daughter has a severe nut allergy, and we worry about her all the time, even when she's fine, and been sensible looking after her dietary needs outside the home. But yeah, we still worry. You'll worry too until the next set of tests.

    As i said in my previous post, when lymph nodes enlarge, they can remain enlarged for life. Between the ages of 12-19 my tonsils were always large. I was a foot up the backside away from having them removed when they suddenly decided to get better and never had a sore throat for decades. Some of us are just very unlucky with sore throats as young 'uns.

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  • Hiya, very pleased to hear it. It's your child, so it's more than understandable you still have niggles and anxiety surrounding their health. Our daughter has a severe nut allergy, and we worry about her all the time, even when she's fine, and been sensible looking after her dietary needs outside the home. But yeah, we still worry. You'll worry too until the next set of tests.

    As i said in my previous post, when lymph nodes enlarge, they can remain enlarged for life. Between the ages of 12-19 my tonsils were always large. I was a foot up the backside away from having them removed when they suddenly decided to get better and never had a sore throat for decades. Some of us are just very unlucky with sore throats as young 'uns.

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