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Surgery to remove right ovary

Sa425
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Hi everyone, after 3 months of tests yesterday I was told I would have to have surgery to remove a large 9cm cyst on my ovary. The doctor said it had solid components which was suspicious. They will remove my right ovary, fallopian tube, appendix and Omentum. I feel quite overwhelmed by all this and it feels like they’re taking so many things out. My ca125 level was 158, I have four other cancer markers tested and they all came back normal. The doctor recommended I have my ca125 retested and also test for ca19-9 as that hasn’t been tested for.

The surgery isn’t going to be keyhole either and I feel so anxious thinking about the recovery period. I was told I would be off work for 6 weeks and unable to do any household chores or drive for 3 months.

I just feel a bit numb and sad. Feels like this has come out of nowhere and suddenly my life has been taken over by it. I was planning a holiday in October to celebrate my birthday but I have to cancel that now. Then there’s the worry and wondering if the cyst is benign or not. I’m in my thirties and haven’t had children yet but I hope that’s something I can still experience one day. Feels like I’ve got a long road ahead. I’ve been able to stay positive and upbeat for the past few months but after yesterdays appointment, I just feel a bit deflated. 

I’m sorry for going on, just felt like I needed to get it off my chest.

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    Hello, I’m so sorry to hear this. Although I am not in the exact same position, I am in a similar position.

    I had a CT scan in December which showed a small dermoid cyst. I then had a MRI in April this year and the MRI report was fast tracked to the cancer unit and a MDT meeting as they were concerned with how it looked. The outcome was that I would have a repeat MRI which I had last week and also due to have a CA125 blood test soon. I don’t know the results yet but the report has already been sent to my Consultant after six days. 

    I had the MRI’s due to investigations of bowel cancer so was completely shocked! I’ve already had a dermoid cyst removed in 2012 and have been told it’s low recurrence rate which is why they are concerned. 

    I hope this can sort of provide you with reassurance that you’re not alone but happy to support you in any way I can or answer any questions. Thinking of you!

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    Hi Sa425,

    Really sorry to hear what you're going through. I'm not in the same position, but I am currently awaiting MRI results on a 14cm complex cyst on my ovary so can understand some of your anxieties - I'm also in my 30s. 

    It sounds like the doctors are being very thorough. I hope the surgery goes ok for you and that the cyst is benign.

    x 

  • Offline in reply to io123

    Thanks   I really appreciate you sharing your story. Thank you for your support. I wouldn’t wish this on anyone but having others to talk to that are also going through something similar is comforting.The waiting is horrible and I hope you’re coping ok. I hope everything works out in the best way possible for you.

    when you had your previous cyst remove was it via keyhole surgery? 

  • Offline in reply to Sunflowergirl123

    Thanks  , I hope your results are back soon and the news is positive. 

    I feel a bit better today, slept well last night. I think the previous two nights I had so much running through my mind and didn’t sleep well.

    Here for you if you ever need someone to talk to x

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