Struggling to cope

I was referred to 2ww on 25th June re enemetrial cancer.

I'm still waiting for an appointment and am finding it harder and harder to cope.

The clinic told me they have no appointments and no gynaecologists. The wait could be up to 20 weeks.

I complained to  pals who were apologetic but couldn't help.

I've complained to icb and am waiting a response.

Yesterday I wrote to my mp who has contacted the hospital for advice.

I had a blood test follow up call from my gp this morning. My white cell count is high and has been going up since May. They have now told me they can't investigate it until I've attended the 2ww clinic.

My hands ate tied everywhere I turn. It's my sons wedding in a few days and I have no idea how I will keep this from everyone and hold it together.

Parents
  • This is awful! I can’t believe you are waiting this long! I know you shouldn’t have to but could you see someone privately for an initial consultation? 

  • I have considered but pals told me that even if I paid for private scans the wait would be the same if I then needed to be seen for treatment. I don't have a lot of spare money and couldn't pay for private treatment other than initial scans. I know there's the possibility that they could tell me all was OK- but it's if they don't, and I'm still left waiting.

  • This is just not acceptable , if it is USC ( Urgent suspected Cancer) you are supposed to be seen within two weeks as per government guidelines , but 20 weeks! I would still try and be seen for an initial consultation privately , then if needed they can refer you back to the nhs for tests xx

  • I know. I've quoted the guidance to the clinic and to pals but it's falling on deaf ears. I have considered  the private route but it seems pointless if my wait for nhs treatment is then still the same. 

    I dud enquire about an initial private consultation. It's £250 for 10 minutes and the outcome is  list of what tests I need. I just can't justify that. It won't give me any clearer idea.

    It just seems crazy that no one can do anything to help. I have my fingers crossed that icb will come back soon..

Reply
  • I know. I've quoted the guidance to the clinic and to pals but it's falling on deaf ears. I have considered  the private route but it seems pointless if my wait for nhs treatment is then still the same. 

    I dud enquire about an initial private consultation. It's £250 for 10 minutes and the outcome is  list of what tests I need. I just can't justify that. It won't give me any clearer idea.

    It just seems crazy that no one can do anything to help. I have my fingers crossed that icb will come back soon..

Children