Good to hear your being seen quite quickly. 

Thanks for thinking of me, I'm very scared not just of the surgery but what comes after, massive change in a short space of time.

Us women we cope, we have to and I think the main thing is to renain positive not necessarily with the outcome but how we deal with it.

Xx

I had both CT scans and an MRI within 8 days of my initial ultrasound and hysteroscopy appointment after they had found cysts on both ovaries, thickened womb lining and polyps/ fibroids. My largest cyst was 5.5 cm though, so smaller than yours. I was told to expect further imaging scans as soon as they found the cysts so they could get a clear idea of their nature. Mine were benign but I'm being monitored every six months.

Hi Leni56, I’m so happy to hear yours were benign and they’re monitoring you. Did you have a raised CA125? 

No, I don’t have a follow up appointment booked. I just got a call yesterday saying there’s a cancellation available if I want it

So I rang the hospital and they’ve booked me in for 4th July, seems like a long wait to me! X

My CA125 was not raised but my CA19.9 levels were extremely high (normal is under 35 - mine was 1850, dropped to 650 after polyps removed). Hope all goes well for you

All I can advise is to try and keep busy. The whole process seems to be waiting for something or other - appointments, results etc. I was referred for irregular and prolonged bleeding. I had a 2 week wait for the first appointment - ultrasound followed by hysteroscopy. That first appointment triggered urgent blood tests, MRI 3 days later and CT scan the following week and then over 4 week wait for results - cysts were not suspicious and womb biopsies came back normal so I guess I would have heard sooner otherwise

Hi, just wanted to check in and see how you are. Hope your appointment went ahead yesterday and you’re feeling ok

Hey! I ended up having the scan the day after I was referred. I ended up getting a cancellation luckily! Scan showed a small cyst on my ovarian. Apparently it’s a normal cyst and nothing suspicious so dr said it will probably go away on its own but will do the ca125 test in a couple of months to see if the level has gone down. I’ve just seen your update, at least they are referring you for extra tests. I also thought an mri was more thorough than a ct… I would of thought if they thought it was cancer they would of got you in before. Let us know how you get on x