Raised C125

Hello,

I've just come back from my doctor who said I have a raised CA125 of 48. I have a history of cysts and fibroids, have had regular cervical screening and a thourough scan in April 2022 (I know it is out of date now) which showed the cysts and fibroids and the endometrial lining being at 8mm.

Doctor has put me on the 2 week cancer pathway for a scan and I am really worried. I'm 49 and have always had heavy, painful periods. I went to the doctor because of spotting.  I have always had bloating usually around the time of my period. I have no other symptoms of ovarian cancer. I'm not losing weight, the internal exam today was fine - healthy looking cervix and no pain on examination, no abdominal fluid or masses detected.

But what if??? I am feeling very tearful, worried and not very positive at all. How worried should I be with a reading of 48

  • I was on 2 week pathway with elevated ca125 I also had big weight loss elevated fit test bloating and other bits and bobs so I was really worried for a while ,I had a hysteroscopy and a colonoscopy and thankfully nothing serious was found they did find I had Diverticulitis and a polyp which they removed and since then I've been fine that was last Sep/Oct ,they say its much more likely to be something not too serious but its still hard not to think the worst ,let us know how you are or if you have any questions x

     

  • Thank you for your reply.  I honestly appreciate your kindness. I lost 2 friends to cancer in 2019 and I think I naturally jump to worse case scenario. I've read lots of comments on this chat relating to a raised ca125 results that have been ok. I will try to remain positive and not worry but it's easier said than done.