Complex ovarian cyst gynecology referal

Hi everyone, 

After having extremely heavy bleeding and large clotting for the past year I decided enough was enough when severe pain started too. 

My white blood count was high but nothing to be concerned over and my c125 was 12 so that's a good low number.

However I was sent for an external and tv ultrasound and today I got the results.

Complex ovarian cyst on left ovary with septation and irregular borders plus some solid areas. 

This cyst has been with me for years the last scan was 6 years ago and it has grown. I'm now being referred to gynecology. Cancer was mentioned alot but it was down played. Has anyone had a cyst like this and it turned out to be nothing to worry about? I know it will need to be taken out as it's causing alot of problems. 

Parents
  • Hi I'm Sam. I've also recently been told that I have a complex cyst on 23rd July - my ultrasound was on the 22nd July, (measurring approx. 4cm with a 2cm vascularised solid component), and was referred to gynaecology within 2 weeks. They're arranging an MRI, but I haven't been told anything else or when. I'm perimenopausal and my CA125 result came back within range (14), but still worried sick. I was just wondering how you are and whether you can share any news please? Many thanks x

  • Hi, I'm sorry to hear that but please stay positive!

    As far as I'm aware the 2 week referral rule doesn't exist anymore. I was told by nhs staff that it was swapped by 28days rule where they must see you, do the tests they need (cancer markers, mri etc whatever they think it's appropriate), confirm wether its cancer or not and discuss the treatment with you.

    I had cea, another ca125 and few other blood tests. All within the range and MRI confirmed that I have endometriosis. 

    I've been referred for hysterectomy and I'm currently waiting to hear when. As its not cancerous (thankfully!) I'm not on fast track anymore and I've been placed on upto 6months long waiting list. 

    Please stay positive, I know it's easier said then done but your ca125 is within the range so it shouldn't be cancerous. I had my mri done very quickly (gynae app was on Monday and I had mri on Wednesday same week) so hopefully you won't wait too long too! Sending lots of luck and best wishes your way x

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  • Hi, I'm sorry to hear that but please stay positive!

    As far as I'm aware the 2 week referral rule doesn't exist anymore. I was told by nhs staff that it was swapped by 28days rule where they must see you, do the tests they need (cancer markers, mri etc whatever they think it's appropriate), confirm wether its cancer or not and discuss the treatment with you.

    I had cea, another ca125 and few other blood tests. All within the range and MRI confirmed that I have endometriosis. 

    I've been referred for hysterectomy and I'm currently waiting to hear when. As its not cancerous (thankfully!) I'm not on fast track anymore and I've been placed on upto 6months long waiting list. 

    Please stay positive, I know it's easier said then done but your ca125 is within the range so it shouldn't be cancerous. I had my mri done very quickly (gynae app was on Monday and I had mri on Wednesday same week) so hopefully you won't wait too long too! Sending lots of luck and best wishes your way x

Children