I had repeat CA125 yesterday. Called GP this morning. CA125 increased to 87 (was 31 last June/July, 39 in January this year). Waiting for GP callback about urgent referral to gynaecology.

I had repeat CA125 yesterday. Called GP this morning. CA125 increased to 87 (was 31 last June/July, 39 in January this year). Waiting for GP callback about urgent referral to gynaecology.

Hi

Hopefully you will be seen in gynae soon. I was seen 13 days after referral. I've only had 3 CA125 done in last 2 years, mine was 31 in December 2020, 124 a few weeks ago and 141 a few weeks ago. I'm still waiting for my CA19-9 but I have hysteroscopy next Wed so hoping they will have results then.

Hopefully they will have answers for you soon

What did gynaecologists do? What's CA19-9? Sorry for the questions. Are you any closer to a diagnoses?

UPDATE 11:55am 12/05/23: GP just called and said the increase in CA125 is significant so he’s sending an urgent referral to gynaecology today on the 2 week cancer pathway so I should get a letter for an appointment in the next 2 weeks. He said they may do another scan and/or a laparoscopy to see if the cyst is cancerous
 

The CA19-9 is another blood test to look for cancer proteins. I guess if this is also high then maybe they are leaning towards a higher chance of cyst being malignant.

In gynae there was not much discussion about a treatment plan, more a conversation of them having to ascertain what's going on and what the next steps are to try and get a clearer picture to work out how they are going to deal with it.

My gynae consultant is not convinced it's an endometrioma cyst and it is complex not a simple cyst so she wants to get as much info on that first before deciding a plan. Once all the results are back from scans/biopsies/blood tests that will all go to MDT and they will decide next steps based on what they decide the cyst type most likely (cancer/benign/endometrioma etc).

Most of my gynae app was discussing the results of what has been found so far and what needs to happen next based on the results so far.

My cyst has some irregularities and has a solid mass protruding into it.

I dont know if any of that helps but your on the right track, the waiting unfortunately is the worst bit and it is a rollercoaster. I have been poked and prodded and scans and bloods etc so much over last few weeks and still no closer to diagnosis but I will get there just like you will, its just a bumpy ride in the meantime.

Thank you. I hope all goes well for you.

Hi, how are you getting on? What was your diagnosis?

I'm still waiting. My appointment is June 13th.

Hiya. Apologies for late reply! Had an op in August to remove cyst, ovary & fallopian tube. CA125 came down to 23 but now back up to 113 so back on the urgent suspected cancer list & awaiting a scan. How are you?