Urgent gynaecology referral

Hello. My mum died from ovarian cancer in 2005 when she was 50 years old. As such, I’ve always been on high alert when it comes to cancer because of mum. 

My first scan was June last year. CA125 was 31. Scan showed a cyst - no concerns. CA125 repeated January this year & raised to 39. Another scan in March this year showed the cyst was hemorrhagic. Had another scan last weeK which showed my cyst is still present and still hemorrhagic. 

My GP called me yesterday requesting my CA125 is repeated. I told the GP I had my thyroid blood test next Friday so I’d called yesterday morning and spoke to the receptionist who said the form for CA125 bloods was there and they’d add the CA125 to be done next Friday also but the GP has worried me now as he said on the phone yesterday he thinks it’s best the CA125 is repeated this week so I’m having it tomorrow and he said to call Friday for results and if risen again it will be an urgent referral to gynaecology.

I asked the GP why it would be urgent and he said basically to see if it’s malignant or cancerous. 

My question is, what will happen at gynaecology? Is it another scan/something else?

I know my CA125 at 39 (risen from 31) isn’t the highest but given mums history, I’m naturally concerned. 

Has anyone had a hemorrhagic cyst turn out be cancerous with a CA125 of around 39?

I’m 36 years old.

Parents
  • Hi 

    I can only comment on my recent experience. My CA125 was 141 and I have a suspected endometrioma cyst so different to your cyst. I too didn't know what to expect from gynae appointment, I was also put on 2ww to gynae and had app earlier today.

    In gynae I had a biopsy of my uterus (not expected so be prepared) and sent for more bloods so be prepared for that and gynae consultant is booking me into hyseroscopy, I'm waiting for appointment for that.

    The gynae consultant has not yet come forward with a plan but I guess all the results have to come back first to then work out what to do.

    I hope this is of some help to you, but of course everyone's situation is different. I'm 46 and not on HRT and not going through menopause yet.

    Take care

  • Thank you so much for replying. That's really good to know. Can I ask how they do the biopsy if you don't mind? Just so I can prepare for it. I hope it's good news for you.

Reply Children
  • They prepared me the same way as if I was having a smear, unfortunately my cervix wasn't behaving so they had to use another piece of apparatus to hold cervix in place then they put a rod thing up through cervix into uterus and clipped a small tissue sample.

    I'm not going to lie to you, it was painful like a sharp pinch then period like pains but it only took a few mins and pains eased after an hour. 

    It's not usual practice to do biopsy on day without pre telling you I don't think, because previously I had biopsy in hysteroscopy clinic (a few years ago) but thought I would mention it so your prepared.

  • Thank you. I had IVF & egg collection which is a similar process and I remember the pain so I really appreciate the heads up so I can prepare.