Hi, I'm new to here and would like to share some of my worries about my almost 5yr old.
For the last 6-8 months, he just hasn't been right. Pale, tired, sleeping 14hrs a night, strange rashes that no steroids or creams work on, itching, reduced intake and now we have noticed night sweats. He's thin, but they say hasn't lost weight in the 6 weeks between his last recorded weights ... but he's also not gaining any.
He has a visible enlarged node in his groin and also ones you can feel in the other as well as enlarged neck nodes. He had an uss abdo today and his stomach nodes around his belly button seemed enlarged (which they tell me is common in children who have had viral infections etc - he HASNT been unwell with cough, colds, sickness bugs etc). He was initially sent for the ultrasound as his liver felt enlarged on examination.
His rash what we keep being told is eczema has spread all over his body - nothing is working on it and it continues to get worse. He is clawing at his skin constantly.
His bloods are stable - which I know can be in lymphomas.
I am absolutely terrified that this is something sinister and feel like our concerns aren't being taken seriously by the doctors. This has been going on for months now and he's not our little boy anymore. He looks awful.
Has anybody else struggled before their lymphoma diagnosis getting taken seriously and were there symptoms brushed off?
thank you in advance x
