Not given the all clear yet?

I had a wonderful experience at the breast clinic, my doctor was one of the loveliest doctors I think I've ever seen.

And I have some good news and some big questions marks which means I'm not out of the woods yet and I'm certainly not discharged. 

First of all where I feel a "knot" or some kind of mass, there isn't. It's thickened milk ducts, which is giving me the pulling sensation and hard feeling.
The radiographer (who I honestly didn't have loads of confidence in) said it was ductal ectasia. 

I then was taken back to the consultant who ask me if I smoked - no, never. And then he was like well judging by your history...  you're incredibly young to be having duct ectasia... he was pretty confused by the results 

Basically i am not being discharged and instead I'm being seen again in 3 months for the works again to see if anything has changed. In his words, its one scan, in one point of time and things can get missed. He mentioned maybe an MRI.

my question is, can duct ectasia be misdiagnosed for DCIS? would an MRI be able to see it clearer then by ultrasound? 

don't get me wrong I'm very happy it's not something aggressive or anything like that but do still feel somewhat in limbo because I told him something just doesn't feel right in my breast. 

  • I'm soo soo happy lots of good news here today with breast clinics about time 

    please relax now lovely I wish you all the best it's good you have shared your story hete as lots of ladies will get hope from you as it proves not every breast clinic appointment has the worst outcome .

    love Lara 

  • Thank you. It's not over yet though, I'm going back for more scans and possible biopsies in 12 weeks. 

  •  

    Hi Missamerica,

    I can understand how you don't feel fully convinced about this fantastic news. However, try to take some solace in that your consultant has not dismissed you from the clinic. It should be reassuring to know that your care team are going to monitor you, to check that there are no changes.

    I am not a doctor, but know that some people need additional tests to the triple assessment, that you've already had done. I understand that an MRI uses magnetic and radio waves to produce a series of images of the inside of the breast (Breast Cancer Care).

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • It is definitely good news that it's not something worse or more aggressive. I've never had a scan on my breasts since I'm 35 so I didn't know what they would find.

    But it has left me with a lingering concern but I think I'm just processing it all. I also show zero symptoms of duct ectasia and I take the max amount of ibuprofen every day for chronic migraines so it's not like I'm not taking anything to take the inflammation down if there was any so the doctor said he couldnt even recommend any anti-inflammatories plus its not even painful. Just feels like theres something pulling my nipple down and shouldn't be there.

     

    I will be keeping a note of symptoms and what i see so I can go back in 3 months (or sooner if something new comes up). Since you're really experienced with all this, can DCIS can sometimes be missed since it's so early and small? Thanks again for your encouragement xx

  • I know already what duct ectasia is? and I don't have any of the symptoms. I was just wondering if sometimes on ultrasounds etc it can be misdiganosed for something else

  •  

    HI MissAmerica,

    As you know, I am not a doctor, so I may well be wrong here. As far as I understand, DCIS in the early stages, is considered to be pre-cancerous. Doctors don't fully understand what causes it, although thery suspect that it may have to do with genetics and lifestyle. It doesn't always progress any further, but this is why they will monitor you to ensure that it doesn't decide to spread. It can be difficult to differentiate between very small early stage cancers and some benign lumps.

    The chances of missing these have greatly reduced in the last 30 years, as screening techniques have improved dramatically. It is only since the advent of routine mammogram screening that DCIS is regularly picked up. Many consultants now advise regular surveillance rather than giving any treatment, unless this progresses to a greater risk.

    Here's hoping that you don't have to return, before you're due back, but please keep us in the loop. 

    Kind regards,


    Jolamine xx

  • Please accept my apologies,  I only posted the link because I thought it was reassuring.

  • Hi, 

    That sounds like great news. I was just wondering whether you heard back from the consultant as he seemed confused. I have similar symptoms has you I feel my right breast is hard, and is a bit bigger than my left?  I don't have any pain. It was red and painful initially but that cleared. Not I just have hardness and right breast bigger than the left.

  • Hey Zay,

    I got a 12 week appointment straight away after the consultation and a letter to say they hope the duct ectasia clears up by the time i go back... the only explanation for the duct ectasia looking at my history, no kids, no preganancies, no smoking, is.. nothing. 

    In fact now it's looking worse, my boob looks more larger and my areola is hugely different to my left. Unfortunately during the breast clinic it was verrrry cold and therefore my areolas both shrunk around the nipple but I have been taking photos and videos of every day occurances to show and prove what I was saying. Always best to get it checked and the doctor was very goood in the sense he said we would get to the bottom of it.