Welcome to the Cancer Chat community Loulou although I'm sorry to hear about your thyroid lump.

Hopefully some of our members who have been on this journey will share their experiences and advice with you soon but if you'd like to discuss any of this with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to answer your questions and put your mind at ease.

We're thinking of you Loulou and hope all goes well with your lobectomy when the time comes.

Kind regards,

Steph, Cancer Chat Moderator

Thank you Steph, that's so kind. Hoping it's not too longer. The nhs is really struggling at the moment and obviously there's people in worse positions than me so fingers crossed it won't be much longer

Hi LouLou 

I'm sorry to hear - I'm in a similar position but not as far down the line as you. I went to my GP in October who hadn't referred me correctly, about a lump in my thyroid making it difficult to breathe, eat and sleep. I finally had a ultrasound which has showed U3 nodules but my GP eventually referred it to the ENT clinic at the hospital but haven't heard yet. The waiting is terrible and I am constantly having to chase. I was meant to hear from the hospital before Christmas, but it's not been reviewed yet. 

No other advice apart from constantly chase and in a similar boat - wishing you all the best. 

Hi Lucy, the wait is terrible. Mine too was u3 then had to wait to be put on the system with ent thyroid clinic. From there it did move a bit quicker. I thought once fna done that would be it, finally I'd have answer but that too was indeterminate thy3f. A few days ago I got my surgery date which is 6th feb. From 20th dec to 6th feb is pretty quick I guess but now the days seem longer. I constantly called ent and said I really need this hurrying up it's effecting my breathing like choking fits now and then and they advised to contact my gp who could put it through as urgent. Try contacting your gp and asking them to put it through as urgent and it will speed things up for you. Hope you get seen really soon. Keep me updated. How are you feeling? 

Update: after my first surgery in feb 2023 my results came back as follicular variant of papillary thyroid carcinoma stage 3. I then went for my second operation on my 1st April 2023 for thyroid completion. From there o recovers to have radioactive iodine in July of that year. I’m currently doing well and have 6monthly checkups and regular testing for the next 10 years. Hoping everyone awaiting surgery or test results the best of luck and I’m always available if anyone wants any more information about surgery recovery treatment etc.

Thank you for sharing your story and updating. I am currently in a similar situation. I've waited two years to have this investigated, my symptoms (which I thought were perimenopause) were never taken seriously. Just brushed off as something else. My neck has never been examined by any doctor I met in the last five years since my symptoms started. I compare with treatment outside the UK bc I feel like so much goes amiss due to hurried consultations. Anyhow, I'm now pregnant and unable to go forward with removing until after birth, in August. May I ask how you've managed since the removal? Side effects and overall wellbeing? Thank you again for sharing your experience.