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Thy3f lump found. Waiting for thyroid lobectomy

Loulou8401
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I've had a lump on my right side of thyroid for nearly 3 years. I had an ultrasound which was u3 and the an fna which came back as thy3f. My nodule is 5.6 cm so quite large and I'm currently waiting those diagnostic thyroid lobectomy. So nervous for surgery but the waiting is worse, just want to know exactly what it is. It's been over 6 months from first ultrasound to even get to this point. Any one in a similar position

  • Welcome to the Cancer Chat community Loulou although I'm sorry to hear about your thyroid lump.

    Hopefully some of our members who have been on this journey will share their experiences and advice with you soon but if you'd like to discuss any of this with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to answer your questions and put your mind at ease.

    We're thinking of you Loulou and hope all goes well with your lobectomy when the time comes.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Thank you Steph, that's so kind. Hoping it's not too longer. The nhs is really struggling at the moment and obviously there's people in worse positions than me so fingers crossed it won't be much longer

  • Offline

    Hi LouLou 

     

    I'm sorry to hear - I'm in a similar position but not as far down the line as you. I went to my GP in October who hadn't referred me correctly, about a lump in my thyroid making it difficult to breathe, eat and sleep. I finally had a ultrasound which has showed U3 nodules but my GP eventually referred it to the ENT clinic at the hospital but haven't heard yet. The waiting is terrible and I am constantly having to chase. I was meant to hear from the hospital before Christmas, but it's not been reviewed yet. 

    No other advice apart from constantly chase and in a similar boat - wishing you all the best. 

  • Offline in reply to DietCokeLucy

    Hi Lucy, the wait is terrible. Mine too was u3 then had to wait to be put on the system with ent thyroid clinic. From there it did move a bit quicker. I thought once fna done that would be it, finally I'd have answer but that too was indeterminate thy3f. A few days ago I got my surgery date which is 6th feb. From 20th dec to 6th feb is pretty quick I guess but now the days seem longer. I constantly called ent and said I really need this hurrying up it's effecting my breathing like choking fits now and then and they advised to contact my gp who could put it through as urgent. Try contacting your gp and asking them to put it through as urgent and it will speed things up for you. Hope you get seen really soon. Keep me updated. How are you feeling? 

  • Offline in reply to Loulou8401

    Update: after my first surgery in feb 2023 my results came back as follicular variant of papillary thyroid carcinoma stage 3. I then went for my second operation on my 1st April 2023 for thyroid completion. From there o recovers to have radioactive iodine in July of that year. I’m currently doing well and have 6monthly checkups and regular testing for the next 10 years. Hoping everyone awaiting surgery or test results the best of luck and I’m always available if anyone wants any more information about surgery recovery treatment etc.

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