Hi Joy123,

I totally get your fears, it's absolutely terrifying! I'm praying that statistics are on our sides and there's nothing malignant there for both of us.

Can I ask what your ca125 levels were? I know it doesn't indicate anything but good to know what others experience was.

Take care of yourself xx

Hi 

my ca125 was 83. That was shock for me because I don't show any symptoms. Only symptom I have it's bloating. No pain any part of my body. That's y it's hard for me to understand. Past few days I had bad anxiety.. didn't eat properly..thinking about all the worst! 
but today for some reason I am clam after my scan. Just want to live the present. Can't do nothing about the future. I want to give my kids time and be there for them. It feel like I been neglecting them for last few days. Think positive

Mines was 75 - I've had on off changes with my bowels and stomach pains for about 7 weeks, I put it down to stress (only got married a few weeks ago so blamed that ) - I'm really hopeful though that it's just a cyst or something and in the grand scheme that 75 might not be crazy high, alot of posts on the chats here that have been pretty good news so im staying positive. 

I'm the same as you, not eating and I've barely slept, GP has given me zopiclone for nights so fingers crossed tonight I rest.

I know you feel you're neglecting your kids but you need to look after yourself too so don't be hard on yourself. 

Let's think positive thoughts - I'm wishing you all the best and keeping my fingers crossed for you. Keep me posted on your chat with your doctor

Hi Catherine 

I had my appointment with gynaecologist in January. They sent me for 2nd scan and repeat blood test, my ca125 level came down to 73. It was 83 in November and my scan was clear as well. 
gyneacologist discharge me and referred my back to the doctor. My doctor doesn't know why my levels are high. So I am waiting for call back. 
how are you doing? Have you been to any appointments?

Hey, 

Hope you are getting on okay, what a time you're having trying to get to the bottom of this - how strange your levels have come back still elevated - have they given any indication of why that might be or is it all a total mystery? 

So my update is that they do believe I have an immature teratoma going by MRI and CT scan - from the results they are positive my lymph nodes, peritoneum, surrounding pelvic and abdominal organs show absolutely no signs of spread so best case - surgery only to remove will be needed (in the next week and possible hysterectomy if needed) and worst case I will need adjuvant chemotherapy which would be discussed once pathology grade the tumour. All in all the gynae team and the oncology nurse are very positive and believe I'll make a full recovery (other than the slight issue of surgical menopause at 30 but I'll take that for a life of health) I'll get close monitoring and fingers crossed I'll be back to normal by the Summer! 

Keep me posted on how you get on x