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2 week wait referral been told it will be 4 weeks

loveinthemist
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After a scan for suspected hernia. I am on a 2 week wait gynae referral for a highly suspicious of malignancy result from the ultrasound community based scan.

on ringing the 2ww gynaecological assessment service they have informed me that there are no appointments available, no one is cancelling and the wait will be 4 weeks.

This is very distressing for me and my family. Should I go private for the assessment and what effect will that have on nhs treatment further down the line. I cannot really afford this but a months wait seems excruciating.

  • Hello loveinthemist and welcome to Cancer Chat.

    I'm sorry to read that after the findings of your ultrasound scan your two-week referral got pushed another two weeks. These things can feel like a lifetime, and it is normal to feel stressed and anxious. Many on this forum understand only too well how you are feeling as they have also had to experience what feels like an endless wait. I will let them come and say hello and share their story with you.

    In the meantime, if you think speaking to someone with a medical background over the phone might help to sort your mind about getting a private assessment or waiting, our team of nurses can be reached on this phone number 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Once you know more, please come back and give us an update, loveinthemist, we're keeping our fingers crossed you'll get this sorted soon and there won't be anything sinister to worry about.

    Best wishes,

  • Offline in reply to Moderator Renata

    Thank you. Following chase up by GP surgery I now have an appointment for early next week. The hospital has put on an extra day of clinic. So at least I should have a better idea by next week. 
    Seems like12 day fast track guarantee is another Tory myth. I feel very sad for those being told they will have a 4 week or 6 week wait for treatment locally.

  • Offline in reply to loveinthemist

    Hi, this is exactly what has happened to me, went for an ultrasound which they thought was a hernia but came back a highly suspicious mass...did you find out what it was?

  • Offline in reply to Meg0012

    Hi Meg

    I have now got a diagnosis but it took a long time. I have just been referred on to The Christie. What looked like masses were pools of ascities so my diagnosis may well not be the same as yours. 
    Now I am further down the pathway I have had to learn to be patient. The more information available before treatment the better targeted it can be.
    Have faith in your team. Once I had seen the gynae team they made sure I had all the non invasive testing first and some targeted biopsies to get the right diagnosis. The hospital team have been very kind and kept me fully informed throughout the process and I am sure yours will be the same.
    Good luck and try to do plenty of fun things while you wait for the diagnosis it helps to reduce the worrying.

  • Offline in reply to loveinthemist

    Hi there,

    thank you for your reply. What did you actually get diagnosed with in the end?

    thanks again for your support xx

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