Hello

My appointment confirmed breast cancer. Grade 2 DCIS. 

Awaiting the results for HER2 which will hopefully be on Wednesday and then we put treatment plan into action but will all depend on positive or negative as to the route we take. 

If I was you I would talk with your manager, if you are anxious about it now they should hopefully be able to make some adjustments for you to ease you in?

X

I'm really sorry to hear about your diagnosis [@Hollibob]‍, I'm in the same boat, my appointment was booked for the 21st but I got a phone call bringing it forward to Wednesday 14th. My mum is trying to be positive and telling me that they couldn't possibly give me bad news over the phone, but I'm focusing more on the fact they brought it forward as I know from others on here that they do give our diagnoses over the phone when necessary.

Let me know what happens next moving forward with treatment and everything... how are you feeling in yourself? Thinking of you x

Oh Hollibob, thats not the news I wanted to read..

Im so sorry to read this honestly.

How are you feeling?? 

You'll have a treatment plan very soon which is good.

Im gonna get a GP appt for the afternoon of my pit patients that I can always cancel. But theyve already sorted the weekend now so not working that thank goodness.  I shoukd have return to work interview etc and they'll have to accommodate my needs. Feel a bit better this evening but yesterday, overnight and this a.m I was a jibbering wreck.

Look after yourself and take care

Thanks all for your messages!

I actually stated the work diagnosis (what a sausage!) It's not in situ it's actually grade 2 invasive ductal carcinoma. 

I'm feeling very up and down, one minute I'm ok and positive saying I'm gonna kick cancers *** and the next minute I'm a mess and saying 'I've got cancer' out loud (not in front of anyone who doesn't yet know).

Still feel a bit in limbo waiting on the results of HER2, get a bit panicky knowing that I have this thing in me and I just want it out!

Then the thought of telling my children and my parents fills me with emotion, I just don't want to put them through any worry so I hope to keep it from the kids as long as possible as they have just gone back to school and have important year ahead of them (y7 and y11). Parents will be harder to keep it from as I am going to need their help when it comes to appointments and school runs.

Hiya.

About telling others, don't go worrying too much about that. There is no right or wrong way to go about it. My wife's cancer nurse kinda guided us through telling our then 14 year old daughter, who suffered from bad anxiety and we were petrified over what her reaction was gonna be.

The nurse advised us to tell her the truth, and not to over embellish things as to save them from worry. Because kids tend to go into themselves, and worry if they feel you are keeping things from them. They deal better with the truth, and that has been our experience. An example of what I'm trying to say, we were told not to say treatment will be a breeze (should you need systematic treatment - chemo etc), then the kids see you being floored for a day. Breezing through treatment and struggling with fatigue for a day or 3 doesn't match up with things being a breeze. No need to go into great detail with them, just keep it simple.

We chose to stick to information that was being relayed to us via the medical people treating my wife. My daughter has coped really well with this. So when my wife was having bad days, it didn't come as a shock.

All that said, you know your kids better than anyone, and what worked in our case, might not be what you think is best for your kids. If you're struggling to tell family, and your kids, you could always contact Macmillan and ask their advice. They're very good, so don't be shy using them. Maggies should you have one near you are also fantastic. They're there to help not only yourself, but your partner and kids.

Thank you very much for your reply I really appreciate your experience. 

I've actually just read a macmillan leaflet about talking to the kids and it's totally changed my view point. I agree with you, I want home to be a safe space for all of us to talk about how we feel and ask questions. 

I should (hopefully) get my HER2 results tomorrow, if not its another week wait, once I have them I will know more about my treatment plan so will be better equipped to talk to the kids and my parents.

Thanks again.

Hi holibob 

just to say sorry about your diagnosis, it's a shock to say the least I also had grade 2 DCIS got diagnosed on June 29 th mine is her2 - , once you are over the shock you do get to feel better as time goes on you get used to it and it do get better honestly stay strong and positive the treatment is so good these days xx virtual hugs xx

So sorry for your results probably a silly question but how are you feeling? 

Big vitural hug for you xx

Hi @K86 not a silly question at all, thank you for asking.

Today I'm not doing so good, I think I pinned too much hope on getting my HER2 results today but no phone call which means it will be at least Wednesday next week now. Its totally spun me out of control, had to log off work and go and lie down as I've given myself a headache and I feel like my chest is so tight!

I just want to know how and when we start treatments and surgery, hate the thought it's potentially growing and spreading inside and I'm  just sat here waiting.

Trying so hard to be brave and positive but today I've crumbled which I'm not proud of.

Tomorrow is another day though so I will dust off and go to work and pretend everything is fine 

Xx