Why is my 2ww melanoma referral being reviewed?

I have a mole on my leg which I saw a (private) dermatologist about around 18 months ago. At the time, they said it needed to be monitored and recommended I get it looked at again in 6 months time. If I'm honest, life got in the way and I pretty much forgot about it. 
 

fast forward to 3 weeks ago, I realise that it's changed quite considerably. It's basically a completely different shape now. I felt like an idiot for not getting it looked at sooner and immediately rang the GP. I sent a comparison of what it looks like now vs 18 months ago and he agreed it had changed quite a bit and immediately said he'd refer me urgently to dermatology. 
 

today I got a letter saying my referral was being reviewed, and to call the hospital if I've not been contacted by the 6th of October (which is a good 7 weeks away). I'm a bit confused because urgent referrals are meant to take 2 weeks, and now I'll have to spend the next 2 months worrying about this and not knowing if/ when they'll contact me. 
 

does anyone happen to know why they could be reviewing it? Is it possible that the hospital has been the photos I sent to the GP and don't think it's urgent? 
 

any advice / reassurance would be very much appreciated, I'm starting to get pretty anxious 

Parents
  • In all my years as a melanoma patient I've never heard of a 'review'  of a referral. It may mean they are reviewing all referrals and placing them in order of perceived urgency, especially if they are behind due to Covid. At the moment, 2 week referrals are rarely meeting this target and may be a week or two later, but October is certainly not acceptable. I would double check with your GP that the referral wasn't sent as none urgent in error. If confirmed it was a 2 week referral, I would then contact the dermatology department to ask what 'review'  means. Don't be afraid to tell them your worries - sometimes they manage to find an earlier date! Good luck and please let us know how you get on.

    Angie (Stage 3 melanoma patient since 2009)

  • I got another letter from them saying the department was very busy at the moment and they would be contacting me 'in due course' - so I can only assume this is the expected waiting time at the moment! Hopefully 7 weeks in an absolutely maximum and it will actually be before then. I can't help but worry that if it is melanoma the delay will make things worse (even though I've already been stupid enough to wait 18 months, so I guess what's a few weeks:cry:) 

    thanks for your reply! 

  • Oh dear. I'm sorry to hear that your hospital has such a long waiting list. You can always ask your GP if there is another hospital with a shorter list (if you are prepared to travel). Or go for a private consultation if you can afford it. If they say it needs removing for a biopsy you can then ask to be transferred back under the NHS so you don't have to pay for private treatment. It may shave a week or two off the initial waiting time. Good luck, please let us know how you get on.

  • Hi again Angie, thanks for replying. 
     

    I called the hospital and asked if they had any more information on my referral - they said it has come back from the consultant and they'd put down that I needed to be seen within 3 months, which they said is one of the more urgent appointments since the average wait time is a year. I'm very confused by the whole thing because I've had an urgent referral for a mole before, and I was seen a week after my GP appointment! 

    I'm looking into private appointments but so far they're all looking pretty unaffordable. 
     

    I'll let you know how it goes! 

     

  • I'm worried, with that time delay, that it's gone through as a non urgent referral. I know several newly diagnosed patients and none have had to wait more than 2 months for a 2 week referral. I would get back to your GP, confirm it was a 2 week referral and, if so, ask about other hospitals.

  • I don't know where you live but I had the photo imaging done privately and it was £ 50 this was in london. 

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