Swollen lymph nodes

Good evening 

Long story short last year. I got told a had swollen spleen but shouldn't worry as blood were normal but few month down the line notice a lump on the left side of neck. GP to me it was a lymph node and that i would have to get referred to a hematologist due to having a swollen spleen aswell. This sent me in total freak out mode as my grandad who had blood cancer was seen regularly by hematologists. So my husband got me seen privately. This was September last year i had a CT on my body and  Scan Ultrasound on my neck and loads of bloods done. They found nothing. I got no explanation for the swollen lymph or for why my spleen was swollen they told me not to worry. The lump in neck seem to go down  but not fully dissappear.

So fast forward this March i notice the lump was feeling bigger shortly after a notice it i started feeling very ill high temperature more lymph nodes in my neck and behind ear started to swell i was in a lot of pain with my jaw and neck headache. I rang 111 due to high temperature hitting 40 i go an appointment with doctors over phone told me he was 99% sure with out seeing me that had glandular fever.

It took weeks for me to feel better. Now we are in mid August and i still have that one swollen lymph nodes on left side of my neck and no explanation for swollen spleen. I have gone back to GP who has referred me to hematologist again but i have few other symptoms too night sweats and i thickly cough and tight chest only when i lie down.

Could they have missed something last year i am worried that i have what my grandad had hodgkin's disease and they might have been missed. No body seems give me any other explanation why i have swollen lymph nodes in neck and why my spleen is swollen. I have an appointment for hematologist on the 9th of September.

Anyone els ever had this and every was ok ?  Can it just be normal for these things to be natural swollen? 

 

  • Hi,

     

    I'm sorry you're going through this it's horrible.

    I've had headaches, dizziness and other symptoms for 2 months now I've just had blood tests done and dreading what the results are ... I have 2 lumps in the back of my neck they did go but now they are back and im honestly very worried the doctors say they are just swollen lymph nodes but didn't explain why they are swollen or what could be causing it .

    I'm going to wait for my results but ik so worried and stressed I can't think straight .

    my doctor said usually if your body is fighting off infections this can cause swollen nodes but didn't investigate any further! 
     

    I get so upset abs frustrated as I feel like nobody is listening. 
    I hope you get some answers x

  • Hi 

    Thanks so much for taking the time to reply. Yes it awful waiting. So scary i keep thinking the worst havnt been able to enjoy the summer holidays with the kids due to worry. Its always  lingering in the back of my mind.

    I am so sorry to hear your going through a similar thing. I hope everything gose ok for you and that you get blood results back very soon. Please keep  me updated in how everything gose for you x

  • Thank you.

    I hope everything goes well for you too,

    ive been the same I have 2 children and I just want to enjoy time with them and my partner but I just can't think about anything else ! 
    the headaches and dizziness scares me ,I'm terrified to know but I'm also at the point where I want to know x
     

  • Hi 

    I was just wondering if you git to the bottom of the lumps and dizziness? Xx

  • Hi, 

     

    I had my symptoms for just over 2 months but it's all gone away... I have nothing now but I'm still really scared of it coming back maybe it was anxiety I don't know but I genuinely felt there was something wrong ..

     

    have you found anything else out? 
    xx