The Wait is so Upsetting

First I want to apologise for posting again as I realise a lot of people post about this issue but I am struggling so much.

I was referred on 2WW by my GP, seen very quickly for CT scan... But 3 weeks later, there is nothing. This wouldn't be as hard if it weren't for the fact no one answers when I call any of the numbers provided :sad: I realise people are busy... But I am so anxious and upset. It's easy to say no news is good news, but when I call my GP they say they have nothing, can see nothing on the system (which they have been able to see in the past when I have had hospital scans). So... I am left feeling like no one has even looked at my scans, which the GP requested as urgent.

:sad: I think the hospital must be very backed up right now, which I can appreciate and sympathise with, but it is so emotionally draining and hard not to fear the worst still. 

  • Hi Emma,

    So sorry to hear you're still waiting - it's the most awful feeling isn't it?? Not knowing what's going on and feeling increasingly anxious as the days go by - can you call your GP and request they call you back as a matter of urgency to discuss your results? If you were on a 2WW then you should have had a response by now.

    I am waiting too, and I was going to contact them today and every day until I hear back from them as the sonographer told me my scan wasn't positive, but couldn't elaborate.

    Wishing you all the best and hope you hear soon.

  • Hi Emma

    Sorry you are waiting on results. It's a horrid thing.

    Is this the only test result you are waiting on?

    Only if there are other related tests there could potentially be a wait before things go onto the system for GP to view. 

    Also, sometimes things have to be cleared by MDT, which happened to me once regarding a precancerous lesion – with MDT considering if margins sufficient or need for further surgery

  • The wait is incredibly difficult. Have you been told how you will hear back from them? At my first appointment on the 2wk referral - ultrasound and hysteroscopy - I was told they would write to me with their findings but that there was a delay in the secretarial dept. Within the next 10 days I then had blood tests, MRI , CT scans and all results have been communicated by letter. The one following the MRI was dated 5th August and recieved yesterday. It was mostly good news for me and I feel sure that I would have had a phone call if treatment had been needed. Hopefully the no news is good news will be true for you too

  • Hi Emma

    I'm in exactly the same boat as you, over three weeks now and still have nothing from the dr. I am sure my anxiety is causing constant different symptoms which doesn't help!

    Take care, hopefully you will hear soon. 

    Corinne

  • I would contact the consultants secretary or specialty sec. They are able to see results and contact the consultant for you. My consultant rang me following a similar request she gave me a date for surgery and told me not use a new medication until after surgery. The nurse specialist is also a good reference they are up to date with the current treatment. 
    l hope you have more success with your calls soon waiting is awful it's hard not to worry. 
    Take care 

    Susie 

  • Hi all :happy: 

    I wanted to thank everyone who replied, it was a comfort to read other's messages. I would reply to each but i'd probably be repeating myself!

    I have an update, which is that unfortunately something was found on my scan that requires further testing. In the end, I had to contact the GP and request a same day appointment to discuss the results, as the hospital didn't get in touch, nor did the consultant secretary ever answer my many calls. I'm a little upset but still realise how very busy everyone is right now. Onto more waiting, I suppose! 

  • I don't blame you!!  I was told that my GP would contact me within seven days and that time is up today - I called yesterday and they said the GP hadn't even reviewed my scans yet.  I feel very tearful and anxious, I just want to know what the next steps are, especially after being told that the blood flow in the tumour is strong and suspicious, I feel like every moment I'm sat here, the cancer is just being pumped around my entire body.

    Anyway, I sincerely hope that you start to feel better soon and you get some answers. Keep us updated! Much love x