Hi Lump24,

Worrying about what might be is the worst thing and we've all done it. 
Generally, tests are carried out to determine that there's nothing serious there especially that your partner's dentist referred him.

So hopefully you'll have better news than your expecting.

Ive found that the forum from Cancer Research or Macmillans is very helpful but there are some sad stories too.

Good luck for tomorrow and let us know how he got on. Tom.

Ps Tom I have just read your other posts - sending support and positivity to you :)

Ahhh thank you we'll see how it goes. But I had good news with bad news. I'm concentrating on the good news. Good luck 

Hi Tom

So he has been diagnosed with the same as you as. We had really positive appointment and explained next step is to take out his tonsils and go from there, they said it's been caught early and is very treatable and even though it's bad news it's good news. 
 

Pet scan showed it's nowhere else thankfully and once they can look at the tonsils they can decide what treatment he needs. 
 

I feel a weight has been taken off my shoulders just heopy we know what's what.  i
 

:) 

I'm sorry to hear that but happy as well.

Its just a matter of focusing on the treatment, easier said though.

Give your partner my regards and to you too.

 I'm having my biopsy on Monday so I'll know more about my treatment.

Keep us updated if you wish but you won't be held to that. That's up to you.

 I wish you both well.  

I'm sorry to hear that but happy as well.

Its just a matter of focusing on the treatment, easier said though.

Give your partner my regards and to you too.

 I'm having my biopsy on Monday so I'll know more about my treatment.

Keep us updated if you wish but you won't be held to that. That's up to you.

 I wish you both well.  

Hi Tom 

Hope all goes well on Monday, did they give you any timescales for when they hope your treatment starts and what it will be or is it a case of assessing after the Biopsy? 

For us the surgeon explained he needs to assess the tonsils first to then decide what needs to happen.  Hopefully the tonsil op will be really soon as my partner is keen to get moving which I am sure you are too. 

Take care 

Hi there,

It'll be two weeks from diagnosis to biopsy on Monday and I was told chemo and radiotherapy.

Today I received notification of a MRI scan on the 12th. So I expect treatment to start shortly afterwards.

I'm working nights this week so missed phone call from hospital. I'll leave phone on tomorrow day time hopefully they'll ring back.

It seems everything coming together after diagnosis.

I'll let you know how it goes of course.

If you check previous post of mine check out "Radioraz" aka Hazel as she has given a virtual tour of her fight with a similar diagnosis to me and your partner and that was four years ago.

Also her other posts with similar people.

Hope this helps.

Hi Tom 

just quick note see how you have been? 
 

update our end my OH is recovering after his tonsils were removed last week which all went as well as it could. the surgeon was happy and next step is our appointment next Wednesday to find out what's the next steps. 
 

At the first appointment we were told until tonsils out and tested he could not confirm as of yet whst next steps will be so bit in limbo to be honest but looks like most have radiotherapy regardless.

hope you have been doing ok 

Hi, so pleased things are progressing and the fact that your/us going through seeing consultants having ops makes this thing a little lighter to accept. I think that anyway.

 I've had my op a week last Monday and it's only today that my swallowing has become normal and feeling a lot better. One left tonsil out.

Saw my consultant on Tuesday but unfortunately no biopsy results!

He said that he'll write to the doctor in charge of treatment and he'll receive the biopsy results but anything unusual in results he'll contact me straight away.

My treatment will be chemoradiotherapy so both together. And I've just received notification that I'll be seeing the treatment doctor on Tuesday finally everything coming together.

Like your OH just want this done.

 Its frustrating not knowing what the biopsy results are but I'll find out shortly.

Please let me know what happens next with yours.

Apologies for delay but I do this on phone and I'm 62! Enough said.

Hi Tom

He is 13 days post op and doing really well, we have been to see the ENT surgeon yesterday who confirmed the op went well and margins are clear except on the bottom after analysis they want him to go back in to this area and remove further tissue although the surgeon thought this area looked clear as well. 

They also confirmed they need to remove all lymph nodes on the right side of his neck and we are now awaiting a date for this which should be in the next couple of weeks, the surgeon is hopeing he is hoping he will not need any further treatment after the neck dissection. 

Unsure if anyone else has been in a similar positon? i was kind of expecting he would need treatment rather than an op or even both but still not sure at this stage.

Hows things with you? 

Thanks 

Hi There, to me what you've said sounds good as they feel that only the nodes being removed will do the job although through a neck dissection.

Like you the only information I have on this is on this website or Macmillans.

In my case I'll have a PEG fitted on Tuesday and my treatment starts a week Wednesday.

My biopsy came through and revealed my left tonsil was the primary and has spread to my left lymph nodes. They've found cancer on my right tonsil and therefore I'll be getting radiotherapy on both sides of my neck.

 I had my mask fitted on Thursday and various other things in preparation for Wednesday.

Incidently, my daughter is a radiotherapist in the hospital where I'll be having treatment.

She was with me on Thursday.

 Although scary I sincerely hope that the option your OH has will be the last of it. 
It is a worrying time for all of us but the prognosis is good.

Take care and again keep us informed. Tom

Hi Tom 

Just wanted to check in with you and say hi and see how you are doing? How has your treatment been? 

My partner had his operation on Friday, some more taken from the tonsil area plus his neck dissection.  He was in on Friday morning and when i went to see him Friday he was much brighter than when he had the tonsillectomy. He stayed in until Sunday night and is now recoverng at home.  His consultant confirmed all went well but again its now waiting for the teams to meet to discuss and then for us to have our follow up meeting to confirm what the next stage is. 

We go into these things without any expectation this way any good news is a bonus. 

Its such a difficult time for anyone going through any type of treatment/surgery and also so hard for families as well, there are good days and bad days but as we said the prognosis is good and brighter days should reach us all soon.

Let me know how you are doing should you wish 

:) 

Hi, thanks for your update. It does sounds positive from what your consultant has said.

A simple sentence " it went well" that's good.

You are right, waiting for the follow up is going to be difficult.

Im now 2 weeks into treatment and feel ok for now except for a dryer mouth and taste buds all over the place. As a result my appetite has diminished and so have to force myself to eat.

But at this time I can live with that.

For me I'm not even thinking about the end of treatment as it's to far away and my follow up is on the 25th November. D day!

But I am optimistic.

Having cancer is a big thing for the patient and the family and when I go to hospital for treatment I'm with other cancer patients and that to me in itself helps me. I'm not the only one and I love it when they ring bell I'm made up for them.

Its a challenge for everyone, patient and family but as we've said the prognosis is good. That is all we should think of when we feel anxious or scared.

As I've said please give updates as and when. I shall do the same. Tom.