Ovarian cancer & prolapsed uturus

Hi everyone,

I am posting this to learn a little more as the doctors suspect my mum has this...

 

She is 57 years old, relatively healthy. We went to a and e as she was experiencing a heavy chest, shortness of breath, right side pain, back ache, nasea and feeling of being full up. The doctor did a blood test and said she has a minor infection and prescribed antibiotics. Fast forward two weeks, the pain in the chest hasn't occurred since but the other symptoms remained. I toom her to hospital today  the doctor said he can see something on her right ovary and referred her for the 14 day investigation for a transvaginal scan. We ended up paying for it privately this evening - this Dr said she can see her uturus is prolapsed likely due to pregnancy, and a 10cm cyst on her left ovary containing hard mass. She said there wasn't a blood supply in the cyst which meant it could be good news but said its 50/50 it could be cancerous. She suggested it's removed ASAP and has types up a report that we will send to her gp. She said the crucial one is to remove the cyst and then look into the prolapsed uturus of course dependant on further investigations.

I was wondering whether anyone has experienced this and what the outcome has been? 

Parents
  • I am over 65 and bilateral ovarian cysts were removed last November, they were complex cysts so potentially cancerous they were found during a colonoscopy for left sided pain. After MRI, ultrasounds ect bloods l had surgery 8 weeks later. The left overy was difficult to locate and remove due to extensive adhesions due to previous surgery everything was stuck together, the oncology surgeon was used to difficult surgery and spent over 4 hours removing it all. 
    Fortunately the biopsies were benign. 
    Take care l hope you have a similar outcome 

    Susie 

  • My mum had her MRI and a contrast CT scan today for her chest, stomach and pelvis. They've said her gynacologist will receive the results in a few days or up to one week. Why would they scan other areas - I feel like they might know something but aren't telling us. No ca125 results yet - the blood test was done on Thursday last week so there is probably a delay due to the weekend.

     

    Thanks

    Anna

  • I am similar to your mum - age and symptoms. An ultrasound for me found polyps, fibroids and a large mass, possibly no blood supply. to it. I've had blood tests for cancer markers, MRI and CT scans of chest/pelvis and pancreas. I was told surgery would mostly likely be reccommended but I've not yet had results from anything. I was told at my initial ultrasound/hysteroscopy that scans were not just to further assess the mass but would also include chest as they would be looking at general health assessment in readiness for surgery. I would imagine that is also the reason for your mum's 'other area scans' but I am very much a beginner at all of this

  • Thanks for your message. I will post updates on what happens with her diagnosis. The odd thing is she has pain in her right side yet the cyst is on the left! The Dr said she didn't know why and the pain is likely due to something else which adds more confusion. Do you mind me asking if you've had your results back yet? The NHS have been pretty quick with my mum she was officially referred on Sunday 24th July and has had one ultrasound/TV, ca125, MRI, CT scan and FIT blood test is scheduled for tomorrow. No results for anything other than the ultrasounds yet though.

  • I had ultrasounds/hysteroscopy on 16th July and had a letter explaining what was found, blood tests on 18th, MRI on 20th and CT scans on 27th and now waiting to hear. I was told case meetings were held on a Thursday and had a phonecall on 22nd to say about the MRI and CT being needed. I have pain on my left side but the mass is on my right, general 'heaviness', bloating and indigestion. Hope you hear soon - the waiting is horrible

  • The waiting is really stressful. I can only imagine how much worse it is for my mum. I am going to call her gp tomorow or Thursday if we don't hear anything re the ca125 as it will be a week on Thursday since she had it done and apparently it shouldn't take that long to get the results. Wishing you the best.

     

    Anna

  • They have probably scanned her chest and stomach due to shortness of breath and nausea, to exclude further problems. I hope you have Mums results soon at least she is being checked by the experts, if there are any other problems they can be referred to the appropriate specialist l was referred by colorectal to gynaecology. Cysts are treatable and can be benign as mine were. 
    take care 

    Susie 
     

     

  • Thanks Susie.

     

    I am honestly overwhelmed with how many people there are on these forums all sharing their stories and helping eachother. Good night x

  • Hi Leni56

    How are you getting on?

     

    Anna x

  • Hi Anna,

    I'm good thank you. My letter arrived with the news that the CT scan and MRI had confirmed that the 'mass' was a benign cyst but they want me to repeat the blood tests next month and go back for further womb biopsies in 6 months. My womb lining was 14.9mm. No mention was made of the polyps that they were unable to remove during the hysteroscopy so I am awaiting further information still. I'm perimenopausall so there's every chance it is just a case of remove the polyps and all good.

    However, I am feeling good, heaps better than I was when I first went to the GP - bloating and indigestion have virtually gone and only occasional twinge rather than pain now - which I hope are all signs that the cyst is indeed shrinking and best of all the bleeding has stopped. I certainly would'nt have even visited the GP if at the end of June if back then I'd felt as I do now.

    I hope your mum hears before too long about her op and that she is feeling ok.

    Leni

  • Hi all,

    Just thought I'd provide an update....

    My mum's robotic keyhole surgery has been booked in for 13th September. Her ovaries, cervix, womb, uturus and omentum are also being removed as a precaution. They will all be sent for a biopsy which should not take longer than two weeks. She will then need to inject herself with blood thinning medication for one month. She will have to stay in hospital for one night assuming everything goes well. We have been told they haven't seen any other issues, and it's likely the complex cyst is benign or borderline but there is a small chance still it could be malignant.

     

    Anna x

  • I think a hysterectomy is fairly routine for prolapsed uterus after menopause but I'm glad your mum got a date through quickly because even though they beleive the cyst to be benign, the element of doubt will be worrying you. I wish her well with the surgery and recovery and hope the cyst is confirmed as benign.

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  • I think a hysterectomy is fairly routine for prolapsed uterus after menopause but I'm glad your mum got a date through quickly because even though they beleive the cyst to be benign, the element of doubt will be worrying you. I wish her well with the surgery and recovery and hope the cyst is confirmed as benign.

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