2ww referral

I finally had some good news today which I didn't expect at all. Writing about what I'm going through really helps me try to make sense of it.

I started getting bowel symptoms in March (going to the toilet more often, bright red blood and pain when eating) and had a positive FIT test but thankfully all other tests (faecal calprotectin, blood tests, rectal and abdominal exam) were all normal. Because of this and my age, I didn't meet the 2ww criteria but I was told I was going to be referred urgently. I asked the hospital how long it should take and they said 20-25 weeks so that would've been by October.

I haven't lost my appetite but recently I've lost a lot of weight and have become incontinent. I had called so many GPs and just felt like giving up as every test just kept coming back normal while I was suffering.

Today, I decided to call my GP at 8am and see if the doctor who had referred me had any telephone appointments available. She sounded concerned about the weight loss and said she doesn't want me to continue losing more weight. I was more concerned that I've become incontinent.

She asked if I've heard from specialists and I said no. I said that I was more scared about my incontinence as it is hard having to live like that but then I got upset and stopped talking. She paused and told me I am young so shouldn't have anything like cancer. I thought that would be it and that she would fob me off. 

She then said she has checked off a lot of symptoms and said a lot of stuff about it and asked if it made sense to me and I said yes but really I should've said no because I've completely forgotten what she said. She then explained to me about the 2 week pathway (which I already know about a lot from research) and I couldn't believe she was actually going to refer me and she asked if I was okay with that and I felt like I was jumping up and down in my head because I couldn't believe I don't need to wait until October (so concerning how long the urgent wait list is) anymore. Of course I said yes. She told me to contact the GP if it's longer than the 2 weeks as soon as possible.

I never thought this would be something I'd be happy about but it feels like I've been waiting for so long so I'm so glad things are moving again. Hoping so much that cancer is ruled out and that I have a less serious condition. 

  • I had bowel changes and weight loss, left sided abdominal pain they did a colonoscopy on the two wait, the results were unexpected complex ovarian cysts. Gynaecology did more tests and operated six weeks later, the operation was over 4 hrs and difficult due to extensive adhesions everything was stuck together.

    l hope you have a similar benign condition thats easily treated and solves your discomfort. Waiting for scans ect is difficult your minds in overdrive, my husband didn't say much but you could tell he was worried. I hope you have some support from family and friends that you can talk to, the nurses in the clinic were helpful. 
    Take care

    susie

  • Thank you Susie for sharing. That does sound really difficult, how are you feeling now?

    I'm glad you didn't have cancer and I hope I don't either.

    I've had support from family. My friends have basically all gone ever since I became less socialable. I think I shared too much about my health situation as that was all that I was thinking about. I'm finding it hard to think about other things. It really helps to talk on here. 

  • Hello amelia98 how are things I'm currently going through the same positive fit test now waiting on referral for 2ww, I have health anxiety also so this is driving me insane I can't stop thinking the worst!

  • Hi Char1995, sorry to hear you're going through the same. I also have health anxiety and the thing I'm most scared about is something being missed in the tests. 

    My GP called today asking if I can give them a stool sample as it's been a while since I last gave stool samples. I think I'll do it on Monday so then it doesn't have to stay in the lab over the weekend, I'm scared of the result being inaccurate.

    If you don't mind sharing, what were your symptoms? If that year in your username was when you were born, hopefully it means that cancer is less likely but it's good we're both going to be seen very soon. 

  • That's the exsact same as me I'm constantly worried about the gp missing things that why I end up demanding more test.

    I've just been worried about stomach and bowl cancer for a while I keep getting indigestion and heartburn and it's just been making me worry so I straight up just asked for a colonoscopy and a camera down my throat and at first my gp refused but then just said to me to do a fit test if I would make me feel better so I did I really didn't tho k it would come back positive but then again I have had on and off bleeding because of hemorrids so I'm really hoping it's that that's causing it but I have had on and of bowl symptoms for years which is always put down to ibs so I literally have no idea what to think all I keep think is I have bowl cancer and I'm going to die leaving my children :( yes the date in my name is correct, would you mind if I asked what symptoms you've had and did you have a positive fit test? Thank you! And I hope your keeping well x

  • Hi Amelia,

    Good to know that your GP has her fair share of common sense.

    It is worth you and anyone else on a 2ww pathway knowing that the vast majority of people on that pathway are diagnosed as NOT having cancer. 
     

    Good luck!

    Dave

  • The symptoms you described sound awful. It must be more worrying that you have children. Glad you will finally have the tests done.

    I started bleeding in March. It was my first symptom but I first got it confused with my period. My period ended and it was clear for a few days and then I went to poo one morning and went to wipe and it was drenched in blood and nothing else so I went to the GP a few times until I finally got a really nice doctor. She gave me a test and said 'this looks for blood' so I knew it would come positive which it did. That was the FIT test.

    Hope things turn out okay for us. x

  • Thank you Dave. She is amazing. The first doctor who I had called told me that the bleeding is nothing to worry about and wrote 'some blood' on my medical notes even though I said that the toilet bowl was filled with blood and the toilet paper was drenched with blood and nothing else.

    The next doctor I had called said that I should come in the next day at 9am but it turned out I didn't have an appointment. The receptionist booked me in with the next available doctor.

    And then I was so worried that doctor would be like the first one. I walked in and she told me that she had read my notes and found it upsetting to read. She looked like she cared when listening to me.

    She gave me tests to do straight away and when my FIT test (she described it as a test to find blood in poo) came positive, she delivered the news in away that wasn't scary at all.

    She said something like 'well it came positive, but we knew that already so now it's time to refer you so we can find where the bleeding's coming from. It's just a process of elimination, could involve a test with a camera'.

    I'm glad she talks in such a simple and reassuring way. I think every GP should talk like this and be proactive instead of fobbing people off.

  • Hi [@char1995]‍ how are you doing now? 

    I sent the stool sample this morning at around 9:30am and I just checked the NHS app and saw that the testing sample was sent off at 11:40am and now just seen that a doctor will call me at 12:25am (I'm such a stalker about my health lol). I wonder what that's going to be about.

  • Hello amelia98 I'm doing good thank you how are you doing? Is this your second fit test you have done? I checked my app this morning and I've seen that I've been given an telephone appointment with one of the nurses from the colonoscopy team to just speak about everything and then we're just go from there I'm so worried it's unreal all I keep thinking is I have bowel cancer it's freaking me out :( the appoiment isn't till Friday I hate having to wait so long I wish someone would just speak to me now :( I'm the same I hate waiting :( I hope everything goes okay for you