2ww referral

I finally had some good news today which I didn't expect at all. Writing about what I'm going through really helps me try to make sense of it.

I started getting bowel symptoms in March (going to the toilet more often, bright red blood and pain when eating) and had a positive FIT test but thankfully all other tests (faecal calprotectin, blood tests, rectal and abdominal exam) were all normal. Because of this and my age, I didn't meet the 2ww criteria but I was told I was going to be referred urgently. I asked the hospital how long it should take and they said 20-25 weeks so that would've been by October.

I haven't lost my appetite but recently I've lost a lot of weight and have become incontinent. I had called so many GPs and just felt like giving up as every test just kept coming back normal while I was suffering.

Today, I decided to call my GP at 8am and see if the doctor who had referred me had any telephone appointments available. She sounded concerned about the weight loss and said she doesn't want me to continue losing more weight. I was more concerned that I've become incontinent.

She asked if I've heard from specialists and I said no. I said that I was more scared about my incontinence as it is hard having to live like that but then I got upset and stopped talking. She paused and told me I am young so shouldn't have anything like cancer. I thought that would be it and that she would fob me off. 

She then said she has checked off a lot of symptoms and said a lot of stuff about it and asked if it made sense to me and I said yes but really I should've said no because I've completely forgotten what she said. She then explained to me about the 2 week pathway (which I already know about a lot from research) and I couldn't believe she was actually going to refer me and she asked if I was okay with that and I felt like I was jumping up and down in my head because I couldn't believe I don't need to wait until October (so concerning how long the urgent wait list is) anymore. Of course I said yes. She told me to contact the GP if it's longer than the 2 weeks as soon as possible.

I never thought this would be something I'd be happy about but it feels like I've been waiting for so long so I'm so glad things are moving again. Hoping so much that cancer is ruled out and that I have a less serious condition. 

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  • Thank you Dave. She is amazing. The first doctor who I had called told me that the bleeding is nothing to worry about and wrote 'some blood' on my medical notes even though I said that the toilet bowl was filled with blood and the toilet paper was drenched with blood and nothing else.

    The next doctor I had called said that I should come in the next day at 9am but it turned out I didn't have an appointment. The receptionist booked me in with the next available doctor.

    And then I was so worried that doctor would be like the first one. I walked in and she told me that she had read my notes and found it upsetting to read. She looked like she cared when listening to me.

    She gave me tests to do straight away and when my FIT test (she described it as a test to find blood in poo) came positive, she delivered the news in away that wasn't scary at all.

    She said something like 'well it came positive, but we knew that already so now it's time to refer you so we can find where the bleeding's coming from. It's just a process of elimination, could involve a test with a camera'.

    I'm glad she talks in such a simple and reassuring way. I think every GP should talk like this and be proactive instead of fobbing people off.