Positive FIT Test

Hi all,

I know diagnosis can only come from a medical professional but I am truly terrified of having bowel/colon cancer. I have had intermittent blood in my stool for a while but put it down to piles. The blood has always been bright red so fresh. Last week I had difficulty passing stools followed by what can only be described as very watery diarreah. I knew it wasn't right so contacted the doctor. To be fair, having read through other stories, I think I'm quite lucky because she immediately ordered a FIT test which I returned same day.

Today I receive a called from the doctor informing me my fit test was positive (17 - I don't understand the numbers) and they were doing an urgent 2 week referral. I then got a called from the hospital and have a telephone appointment with a nurse tomorrow morning to discuss what is next - I believe that will be a colonoscopy. 
 

my concern is that for the last week I've had low grade fever pretty much every day, mostly in the evening. My appetite has left the building so I have lost 8lbs in the last week (I'm overweight!). 

I had a similar episode in July last year but it was as I was admitted to hospital for Covid so I figured it was a symptom of covid but now am worried that I've had symptoms for nearly a whole year and haven't done anything about it.

Does anyone know how the numbers work with a fit test. The doctor today didn't really say much other than he's sending an urgent cancer referral which has given me anxiety beyond anything I've experienced before. 

I'm 42, don't know family history as maternal side we've never known. Paternal side there's no known history of cancer. 

Do the fit result numbers inicate how serious whatever it is could be? I'm so frightened I have cancer. I have two kids, one is in the middle of her GCSEs and I really can't think straight at the moment. 

if it helps anyone. My symptoms:

change in bowel habit - currently go to the toilet every morning - mostly loose stool but only one occurance of the watery stool following constipation the day before

some mucous when I wipe

low grade fever (mainly in the evening) 

recently picked up a cold/flu from my daughter (2 weeks ago so perhaps lower immune system) 

loss of appetite (eating less) 

weight loss

fatigue 

blood in stool (the stool sample I provided had no visible blood and was quite liquid like)
 

Parents
  • 17 is really only barely positive. Anything over 10 is considered a positive result, but some people's results go in to the 100s. It means there is some blood in your stool, but not that much. I am no expert but I think that would be consistent with piles. 

    Sorry to hear of your diagnosis, shopaholic. At least it's not the worst case scenario.

  • Thank you MargaretMary. First doctor I had was a female so she was a little more explanation about what tests she was going to do etc. the results doctor was a male who was very matter of fact and didn't explain the numbers. I've not heard about the FIT test before the first doctor ordered it so when he said it's high I've gone straight to worst case scenario taking into account symptoms. I really hope that it's something straight forward and not the worst case scenario as I'm already halfway over the edge. 

    My concern is that the change in bowel movement coincided with covid so I put the symptoms down to covid if that makes sense. 

    I really appreciate your response. I hope you are right x

  • The FIT test only tests for blood in the stool. Given that you saw blood, a "high" result doesn't tell you anything you didn't already know. All it tells you is that there is blood in the stool but it's not that much. Even the really high results are probably more likely not to be cancer than to be, as lots of things can cause blood in the stool. A high FIT result doesn't mean it is any more likely to be cancer than if you just saw blood in the stool.

    It's good to get it checked out but the odds are it will be something not too serious.

Reply
  • The FIT test only tests for blood in the stool. Given that you saw blood, a "high" result doesn't tell you anything you didn't already know. All it tells you is that there is blood in the stool but it's not that much. Even the really high results are probably more likely not to be cancer than to be, as lots of things can cause blood in the stool. A high FIT result doesn't mean it is any more likely to be cancer than if you just saw blood in the stool.

    It's good to get it checked out but the odds are it will be something not too serious.

Children
  • Thanks. This morning I did blood tests, this evening I got a text from the surgery. Called them and they said doctor needs to speak to me about results but it's a routine appointment. I'm still freaking out as I've never had bloods back so quick and I'm thinking it's either the CA125 or iron which is not a good combination with the FIT test. 

    A lovely nurse from the hospital also called and has booked my colonoscopy for 10th June so in 2 weeks and 2 days I'll have some idea of what going on. 

    Fever is still an issue which is a worry...anyway will keep updating in the hope it helps someone. 

    Big love to everyone. X

  • Hi Niam , did you get your colonoscopy and the results ? Would like to know if you are OK.  I had a fit result of 28 and I sm having the pill cam colonoscopy.  I  am very frightened in case it is colon cancer . But on and off I have seen very little bright blood in my stool and on this particular morning I took the fit test I had been straining and my poo had a little bit of blood on it . So the test would be 28 I'm sure  

  • So would this mean then that the higher the fit reading the more blood there is in the stool ? 

  • Hi Margaret Mary hope you don't mind me asking this question iknow you said you are no expert but you do know enough to bring comfort to those troubled by this particular point. 

    Could you answer me this question please if a person did a fit test on a stool with visible blood on it would this be picked up ? And would it explain a reading of 28 ? I was made to believe that fit tests only pick up ocult blood. It could be wrong . 

  • Yeah, the higher the reading, the more blood there is in the stool. 28 isn't very high. If you look through this site, you'll see people who got results in the hundreds, one or two even hit 1,000. 

    I am not sure whether or not it would pick up visible blood, as my experience happened when our HSE was hacked and as a result, I had the older test.