Have fun it's later than you think

Posted a bit of this in the 'Introduce yourself' part of the forum but as a quick recap...

Had a persistent cough, went to see the doc who suggested an X-Ray, and then a CT and now I have a PET scan in the next 2 weeks. Shadow on my right lung indicating....you know what. I never smoked. Meeting a McMillan nurse at my consultation, who has lovely, was the other big indicator of what is happening.

I was blown away initally but a bit better now after the inital shock. That said I may live longer than I think, don't know yet but right now there are so many thoughts going through my head. i guess the same ones everyone else has.

Thought I'd get another 15-20 years, I'm only 52 now.

I haven't told anyone and slightly wished I hadn't told my wife/mum that I am having a PET scan because if you google those it pretty much describes it as a cancer scan. Perhaps it'll be a way to gently break the news.

We've booked a holiday in 4 weeks and I will get confirmation before then. I'll keep the result to myself otherwise it won't be the best holiday. 

Planning for the future for anything at the moment seems a bit pointless but I have to keep acting is if i have one (and I may have one).

At this pointi ti s good to 'talk' on here as I can't talk to anyone else.

 

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  • You might have to watch the holiday part if you're going abroad, and it turns out to be worst case scenario.  Insurance companies can be fickle when it comes to certain conditions.

    I would read the detail about disclosing pre existing conditions before travelling. The biggest worry is, you need some sort of medical care when away, then find out your insurance company refuses to foot those bills. If you're remaining within the UK, then that's all irrelevant.

  • Hmm, yes, I didn't think of that.

  • So, the PET scan looks for active cells which indicate C. They showed up. I have to have a biopsy for final confirmation. I asked the doc what my chances would be if if it is C. He said there is a good chance it is curable as it only shows in one area (when it has spread it's a different matter).

    I'd kept things to myself up to this point but brought my wife this time and told her I'd pretty much known but hadn't wanted to tell her or anyone. She was mad at me for doing that but was happy to be at this appt. 

    So, not dead yet and may even survive C. Glass half full.....

  • hi & welcome to the club no one wants to be in. 

    I saw your first post and have been watching for your pet ct update, hoping you would have good  news. 

    I was in the same position as yourself and cancer suspected but not confirmed. Was told could be all sorts of things and pet ct will highlight but not confirm without biopsy. 

    I’m glad you have now told your wife. Support is so important and you will feel so much better for not hiding it. I see your due to go away on holiday. Do ensure your consultant is aware/approves and you have adequate health insurance.

    do you know what treatment you will be having? 

    I was advised to cancel my holiday as risks of infections from foreign destinations would mean delaying my treatment for a period to ensure I would be safe for surgery. 

    I too had lung cancer, June 2018. My pet scan illuminated  but couldn’t get a biopsy due to “tumour” position. Had surgery around 2 week after pet scan, they did a frozen section (biopsy) whilst I was under anaesthesia and was told if benign, I would have a wedge resection but if malignant they’d remove that lobe, upper right.  Well it was malignant and out it came. I had a VATS procedure which is less invasive so I was greatful for that.

    its a scary road to be on but having a positive attitude really helps. I wish you all the best and please don’t hesitate to ask me anything. Im no doctor but I can  share my experience if it helps  if you have surgery, what to expect, what  aids help afterwards etc. Take care and please keep us updated . Sending good wishes to all on this journey 

     

     

     

     

  • Thanks Hutchi. 

    At the moment I am going in for a boipsy in a couple of weeks and get resutls before going on hols. I'm not 100% confirmed to be part of the Big C Club but 99% I think.

    No idea on what the treatment will be either. One sstep at a time.

     

    My wife knows and my neighbour (who is close to us). I can see already how different they act towards me. My wife is very loving and attentive, even more than she is normally and I know why. I spent the first couple of days I wondering how she was taking it as I'd been through that a few weeks ago. It has stressed her but not too much I hope. She's clearly worried of course but I am carrying on as normal which hopefully helps.

    My neighbour is also very cuddly when she sees me. I feel like telling them not to be but I think they need it more than me at the moment. It's good that they have someone to talk to about me. 

     

Reply
  • Thanks Hutchi. 

    At the moment I am going in for a boipsy in a couple of weeks and get resutls before going on hols. I'm not 100% confirmed to be part of the Big C Club but 99% I think.

    No idea on what the treatment will be either. One sstep at a time.

     

    My wife knows and my neighbour (who is close to us). I can see already how different they act towards me. My wife is very loving and attentive, even more than she is normally and I know why. I spent the first couple of days I wondering how she was taking it as I'd been through that a few weeks ago. It has stressed her but not too much I hope. She's clearly worried of course but I am carrying on as normal which hopefully helps.

    My neighbour is also very cuddly when she sees me. I feel like telling them not to be but I think they need it more than me at the moment. It's good that they have someone to talk to about me. 

     

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