Breast cancer back or what is going on?

I'm sitting at work, in the same office as my team who have no idea I've just had a concerning phone call. I can just feel the wave of old emotions starting to surge again and I felt like the first place I wanted to turn again was this website which supported me so well last year.

I had breast cancer last year, with surgery in February, followed by radiotherapy. I had my first follow up annual mammogram 8 weeks ago. I was told the results would take 4 to 5 weeks and I still havent' received them. This afternoon I had a call from the Breast Unit that treated  me to say they have made an appointment with my breast surgeon for the 27th May. I asked if that was related to my mammogram results and she wouldn't tell me and said I needed to speak with the surgeon.

It's a telephone appt so I'm unsure what this is about. For others that have had their annual follow up appointments, has a chat with the breast surgeon ever been part of that as a standard 'thing' or has this only been because there was cancer back again? If it was something ominous wouldn't they get me in, instead?

I think I will call the breast care nurses at the breast unit tomorrow to see what more I can find out but I have to say this has totally thrown me.

Any shared experiences or insight anyone can share would be gratefully received

xx

  • Hi Kiwi,

    I read your post and my tummy flipped. I'm similar to you, diagnosed last September with IDC followed by breast conserving surgery and five days radiotherapy. I too was picked up at breast screening. I know I'll be really anxious when it comes to my first anniversary check up and think my head will fall off if I get recalled after! However, my sister, who's had the same as me also got recalled after her first year check and it turned out to be nothing to worry about. Think of the positives, you had a complicated diagnosis so they will be extra vigilent and if it is something, they'll sort it out. 

    I hope you get to know sooner rather than having to wait which is the worst of dealing with cancer. 

    Good luck 

    Jane x

     

     

  • Hi [@JaneRu]‍ 

    thanks so much for your message. Sorry to hear you have also been on this fun journey, and interesting to hear about your sister too. Glad she was OK and hopefully you will be too.

    I managed to talk to one of the nurses at the Breast Unit today and that was a massive relief. She could see my result and said there was nothing to worry about, but that my breast surgeon wanted to discuss ongoing surveillance with me even though my next mammogram will be done next March.

    Ironically, about an hour after talking with the nurse, the much awaited mammogram results letter dropped through my letterbox today as I was working from home and I found out from that that my mammogram didn't show anything suspicious. PHEW. If only that letter had arrived  before I had that phone call yesterday that could have saved me a sleepless night. Apparently they are running so far behind there is an 8 week wait for mammogram results for anything outside the urgent pathway.

    Will be interesting to see what my surgeon wants to discuss. My small, rare breast cancer (Tubular Carcinoma) was hiiding behind a Radial Scar which was only confirmed after surgery - the biopsies showed aytpia at the time but were inconclusive. My surgeon (who is so wonderful) had a gut feeling  the Radial Scar was hiding a small cancer and she was right. I have another radial scar in a different part of the same breast which was also biopsied to death last year but showed no atypia so they decided to leave it. I suspect this might be what she wants to discuss re surveillance. I guess I will find out two weeks tomorrow on the 27th.

    But for now, a huge sigh of relief. It was amazing how the smallest hint of more cancer in my life, made emotions run high.

    Thanks for the supportive message and fingers crossed you will also be fine for your first follow up xx