Loneliness waiting for biopsy results

Hi

New here

I had a biopsy done on a breast lump 3 days ago (along with mammogram and ultrasound). I'm feeling ok as the doctor was reassuring that even if it turns out to be cancer it is small and everything looks clear around it, so would be a case of removing it and lymph nodes and a remote chance I would need radiotherapy.

The thing is I live alone and I've only told a couple of people what's going on and they have just been so uninterested. Maybe I emphasised too much that I was doing ok. One friend, when I told her, didn't ask a single question about anything, like when I was getting the results, what they thought it might be etc, just changed the subject. Another was similar - she was more supportive when I told her about finding the lump, but the first time I saw her after all the tests didn't want to know anything about. I don't want to get too martyr-complex about it but I feel so isolated and like I need it to be my turn to be the one getting a bit of support. I'm genuinely not freaking out about the results and don't want to take over all conversations with this, but I have to admit I wish someone cared.

  • Hi [@Songbird68]‍ 

    By all accounts I have landed in the catchment area of a very good Hospital. I've got to go back and see one of the nurses, not sure when as I wasn't listening properly by that point so I guess they'll send me a letter :confused:

    I'm sure I will be floating around on here for some time....Dr recommended Breast Cancer Care and MacMillan but I don't want to get all flustered with working my way around another forum.

    haha "stupid o'clock" , that made me laugh, I used to get terrible insomnia years ago, especially after working late , and still have bouts of it, mainly when my other half goes fishing for the night and the  next days he asks me what time I went to bed and it's always "stupid o'clock"...it's funny when he's home I fall asleep on the sofa really early! 

    I will definitely keep you in the loop and likewise me in yours.

    Hope you have a nice relaxing weekend xx

  • Hi [@Jolamine]‍ 

    I was surprised that I didn't get upset or overwhelmed but I get what you're saying, it may hit me down the line, not sure if this is me not processing properly ( autistic trait? ) but it certainly made it easier to tell my daughter earlier.

    My Mum's appointment is on Monday so I'll see how that goes for her and then take it from there.

    I actually saw the lead Consultant named on my letter today whereas last time it was a member of the team , so I think he is doing the surgery. It seems fairly straightforward and he was talking about taking it one step at a time so I didn't feel overloaded with treatment plans etc I'm confident they will do whatever needs doing taking into account certain risk factors.

    I'm slightly concerned that the hospital can't access my records prior to 2021 when I moved to a different county so it's relying on me remembering everything...seems bizarre that hospitals haven't got a linked database! 

    I'm glad they were able to arrange for the tests to be done today though.

    Have a nice weekend xx

  •  

    Hi Plumlet.

    How did you get on with telling your daughter and how did she react?  It is usually the consultant named on your letter who will do the surgery. It should all be straightforward. It is strange that hospitals and health authorities only seem to hold records for their own areas and don't have a linked database. We have the same problem here. 

    I have other health problems too, but both my lumpectomy and double mastectomy were much easier than I thought. I am glad to hear that you have confidence in your care team - this makes all the difference. 

    I sincerely hope that all goes well for your Mum on Monday. 

    Kind regards,

    Jolamine xx

     

  • Ah thanks [@Songbird68]‍ . Don't worry I am more than happy to have other conversations going on here, it actually really helps, but that's really kind of you to say. I hope you hear something on Monday and are doing ok with the wait. I am in awe of people who clean to cope with stress!

  • Sorry to hear about your mum [@Plumlet]‍. Hope she will be ok. Sorry also that you are in a position of putting everyone ahead of yourself when you have something so big going on too - you are very kind and also strong to do so. How are you doing today? Hope you are ok. Have a good weekend too x

  • Hi [@Crow_]‍ 

    Thanks for asking, I had a physical slump early last night and still exhausted but feeling mentally OK about it all...I have been planning what to do next week for partner and also daughter's birthday shortly afterwards so that may also be another reason why I'm holding it together.

    I'm hopeful that my mum's lump is harmless, she's been through enough.

    Knocking alcohol on the head for now as it can raise estrogen levels...don't want the lump growing too much before surgery! Not that I can process alcohol very well anyway :laugh: x

     

     

     

     

     

  • Hi [@Jolamine]‍ 

    My daughter got a bit blurry eyed but I think it helped her that I was not clearly upset myself, I kept it factual and as it is , rather than sugar coat, as she prefers that approach, and so do I.

    It's reassuring to hear of your experience, when my Mum had her diagnosis she was otherwise super fit so I have no benchmark of how I'm going to cope.

    Thank you for your concern for my Mum xx

     

  • Hi [@Crow_]‍ 

    I ended up being taken on a nice run out in the car today. Was lovely and sunny - but a cold wind. So the cleaning kind of went by the wayside. I wasn't feeling up to it anyway - I have had unpleasent digestive issues for a few years and at the moment it's playing up due to me not reading the small print ingredients on a snack I ate (which made for some interesting toilet moments over the last few days - not saying anymore - that would be TMI).  It has settled somewhat, but I was feeling a bit drained, so I jumped at the chance of being chauffeur driven through some very beautiful scenery and taking my mind off anything negative.

    I hope you have been able to do some relaxing things to keep your mind occupied - for me it's not easy at night (I keep having really weird dreams - not nightmares - but they wake me up) Often get up and put headphones on and listen to some of my fave music to get myself back to normality (and try not to wake my hubby) usually get one of my cats cuddling up to me too which is very calming. Our minds just wander to the worst outcomes when there is uncertainty, when in reality, when we know what ails us, we can get on with life and do what we can to get better.

    Who knows - you and I might find out what's happening at the same time. Funnier things have happened. I will be keeping an eye open for your updates. 

  • Hi [@Plumlet]‍ ,

    Fingers crossed for your Mum on Monday. Really difficult when you have 2 of you going through the same issues at the same time.  I am sure whatever happens you will be strong together - I know I was very close to my Mum and we supported each other through everything.

    Please let me know how you get on. Sending big virtual hugs to both of you xxx

     

     

     

  •  

    Hi Plumlet,

    I am glad to hear that you have told her. It amazing what big ears children have. Something like a simple overheard conversation or telephone call can arouse suspicions and this information comes so much better when it comes directly from you. She will probably discuss this with her friends at school and hear of some poor outcomes. It is important that you can reassure her that there are different types of breast cancers with different outcomes and, that you have caught yours early.

    I was 60 when I was first diagnosed and just recovering from major surgery. I'm sure that you will manage too.

    Keeping my fingers crossed for you and your Mum.

    Kind regards,

    Jolamine xx