Loneliness waiting for biopsy results

Hi

New here

I had a biopsy done on a breast lump 3 days ago (along with mammogram and ultrasound). I'm feeling ok as the doctor was reassuring that even if it turns out to be cancer it is small and everything looks clear around it, so would be a case of removing it and lymph nodes and a remote chance I would need radiotherapy.

The thing is I live alone and I've only told a couple of people what's going on and they have just been so uninterested. Maybe I emphasised too much that I was doing ok. One friend, when I told her, didn't ask a single question about anything, like when I was getting the results, what they thought it might be etc, just changed the subject. Another was similar - she was more supportive when I told her about finding the lump, but the first time I saw her after all the tests didn't want to know anything about. I don't want to get too martyr-complex about it but I feel so isolated and like I need it to be my turn to be the one getting a bit of support. I'm genuinely not freaking out about the results and don't want to take over all conversations with this, but I have to admit I wish someone cared.

  • Hi Crow, 

    I called the surgeons secretary a week after the lump was removed to get an idea of when the results were going to be in - she said there's a backlog and 3 weeks as a minimum - so I have it marked on my calendar to call again  My lump wasn't what they were expecting and what should have been a simple cyst sent to histology turned into some very sinister looking liquid being sent to cytology as well as the lump to histology.  So no follow up had been planned. Not to say it won't be once the results are in.

    You have been half warned of what to expect with your results - not that it makes it any easier, but you have been sent to see the right people from the start and that is a positive. I am sure you will be dealt with swiftly too. My positive is having this lump removed- but it was not without me having to assert myself!  

    I am sure we will both know where we stand in the next few weeks and in the grand scheme of things - it's not that long. Be strong (I know you are!) And be kind to yourself, do things that make you happy xx

     

  • Hi [@Crow_]‍ 

    Glad you were feeling better Yesterday and hope that's carried into Today as well :happy:

    I felt very tired after my biopsy too. Emotional stresses leave me feeling physically exhausted but I've always put that down to having Chronic Fatigue/ME...it doesn't take much to wipe me out for the week :sad:

    I'm wondering did you try speaking to anyone else or have you found your support "tribe" here?

    I'm holding back now until I get my results.

    I haven't started any discussions myself on here yet, just felt compelled to jump in on a few posts that struck a chord with me...

    I will come back and let you know how I get on this Friday, thanks for wishing me luck :love:

     

  • Hope you hear something from them soon Songbird - and will find out what happens next (if anything) instead of the waiting game.

    Yes it's been helpful how swiftly I got to see the relevant people and it actually was helpful to be told what the worst case scenario would be for me (as long as they are right about that!) They've really been excellent - the disparity between them and other departments of  healthcare in my area is pretty shocking tbh but makes me appreciate them all the more.

    Thanks - you be kind to yourself too and best of luck x

  • Hi Plumlet

    Thank you - I didn't tell anyone else yet but more because I just haven't felt the need to - I've been feeling more relaxed - it has definitely helped to be here and get support from people who understand. Sorry to hear you're dealing with CF/ME on top of everything else.

    Hope all goes well on Friday x

  • Hi [@Crow_]‍ 

    Ah that's good you're feeling more relaxed.

    As much as I've been advising others to keep busy it's getting difficult to take my own advice... I'm completely exhausted!

    Just Tomorrow to get through then it's Friday.x

  • Hi Crow, it's really great to hear you're more relaxed.. ️

    How are you feeling today? I hope you're feeling well and still relaxed. Really glad you're finding being here helpful. I find it really helpful to.

    Sorry I didn't reply sooner, my memory is shocking now don't always remember.

    Sending hugs xx

    Love Jess xx

  • Hi Plumlet,

     Good luck for Friday - I will be checking in to see how you got on. I am still waiting to hear anything at all - never got a follow up appointment pre-op as I have said before. I might try to call Friday (will be 3 weeks exactly) and see if there's any news!  

  • Hi Crow,

    Is your appointment next Wednesday? Let me know how you get on. This waiting lark isn't all it's cracked up to be! I'm still waiting to hear anything.

  • Hi [@Songbird68]‍ 

    Thank you :love:

    ,I've pretty much run out of patience now and it's only been 2 weeks...I just need to know asap as I'm holding back on making plans to visit friends and family and it's getting difficult keeping this from them...and obviously it's just so stressful.

    Definitely give them a call tomorrow, why wait til Friday?  3 weeks should be plenty of time to identify Lenny! 

  • Hi Plumlet,

    I did call hospital today. The results are in - but the surgeon hasn't signed them off. Admin said they would call back with an update - but they didn't. I was very busy at work myself - so I kind of forgot - but the surgeon I saw wasn't the most helpful - after all my first meeting with him was 45mins late and he didn't apologise or anything. I am assuming everything is fine - still want to know what the hell it was tho. No point me trying tomorrow as Friday is his day case surgery day - so I'll try again Monday! Good luck for tomorrow xx