Hi Lulu,

You're absolutely right about not being able to prepare, it almost feels like the fear of the unknown I had before experiencing childbirth for the first time.

I'm sorry to hear about your carcinomas but glad to hear you're soldiering on and I completely understand that you'd be worried about it returning. I've seen my mother have the same worry although I must report that she has now been cancer free for nearly two decades so that does give me some hope. 

I'm leaning a lot on my partner and (grown up) daughter ( a little less ) and they're letting me verbalise everything as it comes, rather than bottling it up so that's a real help. Trying to keep busy as well but I have several chronic illnesses and am severely anaemic so my energy levels are terrible, I'm just so tired already and I supose the biggest concern about a malignant result is how am I going to cope physically...but I'll cross that bridge when I come to it.

Thank you for your post and your best wishes! x

Hi Jolamine,

Spot on.

It has already been a rollercoaster of emotions and I've had several conversations with my mother this week already where I'm giving her support and talking about her anxiety and not sure I can hold out until the 22nd.

It is absolutely the not knowing that is eating away at me.

The GP copy letter I got yesterday has confused me also, it describes their findings a "speculated mass" but all I can find info about is a "spiculated mass"...typo or not? :confused:

Thank you for the reply xx

Hi Plumlet,

I can fully appreciate the unenviable situation you find yourself in. Being diagnosed first time around is bad enough, but waiting for a second diagnosis is even worse. Trying to support your mum whilst saying nothing about your own worries must be sheer torture. I am hoping that your cancer is someting like DCIS which should be straightforward to deal with.

I have had 2 bouts of breast cancer myself - the first was 12 years ago and the second was 11 years ago. First time I had a lumpectomy, followed by a double mastectomy the following year. Like you, I have a plethora of other health complications. I found the extreme fatigue one of the hardest things to cope with. Going through treatment the first two years was not particularly easy and I had a hard time with side-effects from hormone therapy, which I took for 7½ years. 

Since then my energy levels have improved, although they are not the same as they used to be and I am still leading a busy and fulfilled life. Here's hoping that your mum can do the same.

 I am delighted to hear that you are able to lean on your partner and daughter and can verbalise everything as it comes, rather than bottling it up. It makes a huge difference to have that support. Don't worry about how you'll cope if you get a malignant result, many of us worry about this, but we just have to get on with it and all manage to do it in the end.

Kind regards,

Jolamine xx

Oh gosh I'm so sorry Plumlet, I imagine you must be so stressed and anxious right now. The extra 6 days must feel like a lifetime and doesn't feel fair having to wait holding the worry and uncertainty. Do keep us posted with how you are doing. 

Hi Jolamine,

How awful for you to have had to have more surgery so soon after the first but I am so glad you've got though it all and I can see from your post numbers that you've used your experience in a very positive way by being able to give help and support to so many people on this forum.

What a kind soul you are  :love:

I have accepted that there is nothing I can do at this stage apart from wait , I'm focussing on treating my anaemia and Vit D deficiency, added more fruit/veg to my diet , drinking more water , resting, pacing and keeping as busy as I can so regardless of a good or bad result I'll be in a better place with regards to my general health. xx

Hi Jess,

Yes I have been really anxious but pushing myself to use my anxiety "toolkit" so get me though the extra days. Trying not to overthink , which is tough as it's how my brain seems to be wired but keeping busy and distracted is the strategy that seems to be working for the moment.

I'm also finding this forum really helpful and it's heartwarming to feel the support , and also to be able to give it if I can :love:

I have left a message with the Consultant's secretary ( no-one in on Mondays ) as he did ask for me to be seen at the next clinic after their meeting ( 14th ) it would help me to understand why this isn't happening but I will update as soon as I've got any further news.

Hi Plumlet,

I am glad to hear that you are focussing on dealing with your anaemia and vitamin deficiency. Getting into better health can only help your treatment and recovery. Keeping yourself preoccupied definitely does help rhe wait.

I am glad to hear that you have contacted your consultant's secretary and hope that she can help you with an earlier appointment.

Kind regards,

Jolamine xx

Hi Jolamine,

The Secretary rang me first thing thismorning.

She said that the Consultant got muddled and the results clinic runs on Fridays, The first Friday is Good Friday so there is no clinic and that's why I've had to wait until the 22nd.

I asked if there were any lab delays expected which might lead to my appointment being rescheduled again (as I have to arrange for someone to come with me this time) and she said everything is running OK.

I also asked if the letter should have said "spiculated" instead of "speculated" and she said that it was indeed a typo.

I will however still keep some hope of the mass being benign.

:happy:

Hi I'm 29 I feel like im in a similar situation, got lumps in my right breast initially my underarm and breast were painful, I've been referred to the breast clinic for the 20th April and it scares me.

im getting the worst pain all over my back and arms and leg I've convinced myself I have secondary breast cancer, I don't even have children feel like all this waiting is making me so anxious, has anyone been through anything similar