Scared Ovarian Diagnosis

Hi, I'm new here and petrified. I haven't had a cancer diagnosis yet so you may think I shouldn't be hear but I'm petrified. I've had bloating for about 4 weeks and after routing blood test an elevated CA125 of over 300. I'm so swollen round my middle and now think it could be ascites not bloating and I feel so stupid and worried that might be a sign I have more advanced cancer. I've got an appt on Monday morning with a gynaecologist. I have a 5 year old and can't even think about what this may mean. Anyone who has been through this or has any advice welcome. Thank you x

Parents
  • Hi-I have also just recently been told the devastating news after my blood results came back as high.. I had an mri/ ct scan pretty much straight away where they found a tumour on my left ovary also bowel and adrenal problems.. I'm so sorry.. please don't worry.. I know it's very difficult... and scary... I'm here if you need to chat..xx

  • Hi, 

    Can I ask how long your waited for diagnosis after scans?

    I had a scan on 9/3 and was told I had a very large ovary and other things going on in my womb. 11/3 was called to the doctors who said it was a fast track 2 week referral. Had bloods 14/3, which was ca125 level 44. 15/3 saw gynaecologist who had a look with camera and said many polyps and took a biopsy. Also referred me for an mri which I had on Friday. I thought that was it and would then await an appointment for results but have had a phone call today to say I now need a ct scan tomorrow. Everything is moving fast but am desperate to just know what's wrong and was wondering if I'd know by the end of this week. 

  • Hi Tink, 

    I can't help much, you're a step or two ahead of me at the moment.  Maybe one of the others is further along and can give an idea.

    How are you holding up? I was doing ok really until I got my copy of the letter from the colposcopy clinic to my GP which gave the measurements of my ovary.  That was pretty much a gulp moment, I have grapefruit smaller for breakfast!!

  • It's the unknown which is the hardest part. I'm not sure of the exact measurement of my ovary but when I had the transvaginal scan he said it was extremely large 

    My daughter is 18 in 2 weeks and just need to know what's going on so I can arrange her celebrations. 

  • I had my CT scan 14/3 and my MRI 18/3 and am due to get results on 28/3. 
     

    Fingers crossed for good results for all, the waiting is awful. I'm also just staying home now until they can sort my abdomen as one of my team asked when I was 'due' as he heard someone talking about me. So upsetting. 

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  • I had my CT scan 14/3 and my MRI 18/3 and am due to get results on 28/3. 
     

    Fingers crossed for good results for all, the waiting is awful. I'm also just staying home now until they can sort my abdomen as one of my team asked when I was 'due' as he heard someone talking about me. So upsetting. 

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